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Galaxy_Nerd13

709d

Do people eventually become resistant to Keppra? I was told this is a rare form of epilepsy (myoclonic epilepsy) is this true? What are the lifetime risks of multiple concussions? Did your seziure journey happen when you were young too? I was told I would grown out of it..now they're saying I probably never will. Has that happened to anyone else? Did your seziure journey make you suicidal? I was young when dealing with this along with a lot of other stuff and the constant Dr appts and pill changes and honestly the pain after a seziure too just made me want to take the easy way out a lot..it wasn't just the seziures but they certainly didn't help those tendencies..

Top reply
    • yumiko

      336d

      I've been on keppra for most my life but im not sure if its effects have changed, I have developed myoclonic seizures over the past 3 years but I've recently been told that they think at some stage I grew out of my epilepsy and now my brain is just faking the seizures because of stress (we don't know for sure yet) I grew up with absent seizures but into my teenage years I definitely got suicidal, not understanding why I could just be like everyone else

    • yumiko

      336d

      I've been on keppra for most my life but im not sure if its effects have changed, I have developed myoclonic seizures over the past 3 years but I've recently been told that they think at some stage I grew out of my epilepsy and now my brain is just faking the seizures because of stress (we don't know for sure yet) I grew up with absent seizures but into my teenage years I definitely got suicidal, not understanding why I could just be like everyone else

    • Persephone2018

      610d

      I had and I mean literally the same thing happen to me. I know your pain and Im sorry you had to deal with that. But NO you not alone in this.

    • CallieDallaRosa

      693d

      I know how you feel. My first seizure was March before I turned 12. Scariest moment ever waking up in an ambulance. The Medic was trying to calm me down and told me he used to have seizures too and that he grew out of them and he decided to be a medic cause he wanted to be there to help anyone else going through similar scenarios. I will mever forget that conversation. I'm about to be 18 and that 20 min drive to the ER has helped me get through a lot in the past 7 years. I had a seizure at school one time and students made fun of me and other would joke saying "thanks for getting us put of our classes for an hour and a half" wasn't the best time through middle school and in highschool people would make seizure jokes. They never knew how it felt to have one or the after effects. Their jokes added ontop of my home life was awful especially when I was told I couldn't go down the career path I wanted by my school counselor cause of my seizures. I honestly don't know what to do for a career so I can live on my own or atleast afford my own things. Epilepsy has changed so much whether it be my past present and it even effects my future. So I completely understand the suicidal thoughts and it only made em worse due to the fact I had nobody I trusted to talk to about it. And the people I thought I could trust either didn't understand or just went around laughing about it calling me weak due to the fact I couldn't handle a "simple medical condition" I hope your doing better now and just know your not alone. Also apologies for the long comment I haven't really been able to vent about all my epilepsy related "problems"/thoughts/experiences

    • signature_sauce

      708d

      I am about to be 21 and i have grand mal and absence seizures. i tried topimax and lamotrigine and neither worked on their own but my keppra mixed with lamotrigine had made my seizures go away as long as i take them as scheduled. i’ve been on the keppra specifically for about a year and a half. i haven’t been resistant to it yet. i started having absence seizures around the age of 8 and they misdiagnosed me with adhd. i started having grand mal seizures when i was 16. i did become very suicidal around this time. i was already very depressed and anxious and having the grand mal seizures made it worse. i’ve endured and overcome those thoughts now.

    • D3stiny

      709d

      Sorry to hear that 💔 I’ve been taking Keppra for almost 9 years now, and there was a point where I had to eventually increase the dose because I was still having seizures. Now I’m on 1750 and I’ve been seizure free for 5 years. So I guess in some cases, it really depends on the amount of Keppra you’re taking. As for concussions personally I never had one but it could potentially increase seizures due to impact, or possibly stroke. I started my seizure journey when I was about 8 or 9 years old. It made me suicidal but I’m not really sure that it was the Keppra since I also have anxiety and bpd too.

      • Galaxy_Nerd13

        709d

        @D3stiny I just worry about the Keppra increasing because I also had to up my dose because I was starting to have more frequent seziures. I'm just terrified one day she'll (my doc) tell me the Keppra is no longer working/gonna work..Keppra is the only thing that has helped so far and if it all of a sudden stops helping/working idk what I'll do.

        • D3stiny

          709d

          @Galaxy_Nerd13 oh I see I completely understand. I’m afraid of Keppra not working as well because it’s the only med that really helps me. I don’t want to go back to having seizures at all. What other meds have you tried?

    • strugglebus

      709d

      I take zonisamide for my jme, I was diagnosed at 17, they told me of the possibility of growing out of it since it's technically a "juvenile" development, but I don't know. Me being diagnosed really changed my whole life and made me lose my life's purpose, and I still have yet to find one. I'm not sure if that's made me suicidal I just know I haven't found a new reason to live yet and I wouldn't be upset if I died.

      • Galaxy_Nerd13

        709d

        @strugglebus I was diagnosed with the juvenile form too..at about 19 years old I talked to my doc about possibly getting off my Keppra since I haven't had a seziure it quite awhile and I figured I had grown outta them..nope still have seziure like activity in the brain so she won't take me off my meds and has since re-diagnosed it as just myoclonic epilepsy since I didn't end up growing outta it..I hope you do tho!! This crap is NOT fun =( but please,please don't lose hope. You're stronger than the epilepsy!! You can find another life's purpose it might take a bit but you will. I'm currently trying to find myself and it won't be easy and hasn't been so far but..I'm glad I'm still alive today 😊

        • strugglebus

          709d

          @Galaxy_Nerd13 that's weird, I haven't been re-diagnosed with myoclonic epilepsy, and I'm 20 now and I see my neurologist regularly at least every 6 months. But thank you. I hope our brains will glitch just right that it will fix themselves. Or correctly grow out of the epilepsy

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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