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yumiko

1y ago

Uncertainty about my epilepsy diagnosis

I've recently been told that the doctors dont know if I still have epilepsy anymore. Let me start this off by saying I've been diagnosed with photosensitive epilepsy since I was 8 and I have absent seizures but I believe I have developed myoclonic seizures in my late teens. I recently did a EEG and nothing showed up but it could just be medication masking the epilepsy or I might not have epilepsy anymore. That sounds great when you first think about it but for me personally thinking that the thing I've suffered with for so long could be my brain playing tricks on me is infuriating and the fact that the only treatment if it isn't epilepsy anymore would be therapy and exercise basically. idk how to feel, what do I do?

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JoranTal

1y ago

I went through the same thing and wound up having a massive seizure a few years down the line. Been back on meds for 14 years. You are allowed to say “I disagree” and go to a second opinion.
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yumiko

1y ago

were you taken off your medication because they thought the epilepsy wasn't there anymore? and thats why you had a big seizure?

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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