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yellowbug

679d

I've had "seizures" or "episodes" for as long as I can remember. Over time the "seizures" became more frequent. I started medication and haven't had one in a about year now. I put the word seizure in quotation marks because I haven't been officially diagnosed. I've done every test more times then I can remember but it always shows up blank. Doctors couldn't ever find any real reason so they would always give me a temporary reason with no solution. Doctors kept denying my condition for years and years. Part of the denial was I experienced weird symptoms that most doctors had never heard of before, those symptoms still have no explanation and I have yet to find anyone who can relate to them. I live right by one of the countries top medical schools and even with all their experience and top equipment they couldn't diagnose me. It wasn't until two medical professionals witnessed one and confirmed it was a seizure that I was put on medication. However doctors still refuse to diagnose me and have given up running tests. I live with a condition that has no explanation and no real diagnosis. It feels discouraging and like Im going to be stuck never knowing why and never having any real solutions due to the lack of why.

    • LadyTauriel

      679d

      Have they done the video monitoring yet? That's how we figured out where mine were coming from.

      • yellowbug

        679d

        @LadyTauriel Ive considered doing that test but the doctors keep saying I dont have them often enough. The doctors say it would just be a waste of time and turn up nothing.

        • LadyTauriel

          679d

          @yellowbug make sure they note that in your chart. Tell them to write down that you requested the testing and they said no.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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