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yellowbug

2y ago

Living with Unexplained Seizures: My Frustrating Journey

I've had "seizures" or "episodes" for as long as I can remember. Over time the "seizures" became more frequent. I started medication and haven't had one in a about year now. I put the word seizure in quotation marks because I haven't been officially diagnosed. I've done every test more times then I can remember but it always shows up blank. Doctors couldn't ever find any real reason so they would always give me a temporary reason with no solution. Doctors kept denying my condition for years and years. Part of the denial was I experienced weird symptoms that most doctors had never heard of before, those symptoms still have no explanation and I have yet to find anyone who can relate to them. I live right by one of the countries top medical schools and even with all their experience and top equipment they couldn't diagnose me. It wasn't until two medical professionals witnessed one and confirmed it was a seizure that I was put on medication. However doctors still refuse to diagnose me and have given up running tests. I live with a condition that has no explanation and no real diagnosis. It feels discouraging and like Im going to be stuck never knowing why and never having any real solutions due to the lack of why.

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blueflovver

2y ago

Does the diagnosis really matter? As long as the meds keep symptoms in check all's good isn't it?
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yellowbug

2y ago

the only issue I have with not having a diagnosis is idk what causes it. The medicine keeps it in check but outside of that Idk how to prevent it. Like how some people know to avoid flashing lights. For now the medicine is great i just worry if it stops working

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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