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Persephone9

854d

How did you get diagnosed with Ehlers-Danlos syndrome, and did you find it helpful when you did?

    • UnluckyUnicorn

      854d

      Geneticist and I found it helpful in having other doctors take me seriously as well as allowing myself to finally call it what it is

    • Bijoux_bean22

      854d

      To get an EDS diagnosis you have to go to the geneticist. I found it helpful ish, but I had been suspecting EDS for a long time. It really just gives weight to the random symptoms and some funny aha moments.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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