Diagnosing Hypermobility Syndrome/EDS

How did you go about being diagnosed with hypermobility syndrome/EDS? Seeing a specialist? I don’t think my PCP would be able to do anything helpful but I don’t know where to start.

Your answer

goblin49

1y ago

I had originally gone through rheumatology, which I know is successful for some people, but for me I couldn't find anyone who was super knowledgeable on hypermobility disorders. So I got a referral to a geneticist; hopefully I'll be able to get some answers there!

StanleytheCat

1y ago

Thank you! I’m worried I won’t be taken seriously since I haven’t had any dislocations - but I have long-standing multi-joint pain and some possibly related diagnoses, and would love a diagnosis/answers.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

About Alike Wisdom Blog FAQ Editorial Team All Conditions All Posts All Communities

Your Privacy Stories Community Guidelines Terms of Use Privacy Policy Helplines Contact Us Group Chats Guidelines