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735d
Does anyone else find their HS boils/lesions painful to the point of being debilitating and effects your movement and ability to work, exercise, sit etc?
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Generalized pain
Hidradenitis Suppurativa (HS)
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701d
@nurse same here
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705d
Yes, my thigh and groin scream because I have to walk a lot, I cry a lot in bathrooms and try to keep them covered with bandaids and moist with vaseline
706d
Yeeessss omgggg I JUST had one and I could barely move smh š©šš¾
712d
I hate mine! It definitely effects me in my everyday life. I also get it on my face its not so rare but its pretty rare and it pains me every day to even put the slightest butterfly pressure on my face to do my makeup everyday to hide my hs!
715d
I've missed work from HS. It is really hard to explain to somebody who isn't familiar with the condition. Most people don't understand or don't believe when you do explain. It's horrible.
@twitch926 ā¤ļøI can relate this happens to me all the time when I get flare ups thatās are super painful I canāt slee and I have to stay home in one spot the moment I move itās a wrap
728d
Absolutely! As time has gone by I have learned ways to deal. It has also changed for me a few decades in and many of mine consistently drain now and I don't flare these huge bumps that have to be excruciating before they get handled. It still affects me every day and I'm sorry you deal with this.
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ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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