Dealing with Chronic Pain and Medical Gaslighting

I was hospitalized many times with lower abdominal pain. Finally saw gyn surgeon. We decided to do hysterectomy. He decided to open me up completely to get good look. He found my entire abdominal area full of adhesions. He said my uterus was stuck to itself, tearing each month during period. He also noted my intestines were covered in adhesions. He felt the pain was from the adhesions tearing. I did not have a mast cell diagnosis at the time but adhesions are common for mcas. 11 years after he removed my uterus/cervix, I started having debilitating pain again. Went back to him. He removed my fallopian tube and ovaries second surgery. He said adhesions had covered all and he had to cut my bladder free of adhesions. Adhesions do not show up on most imaging.

Have you ever had a GI MAP test?

Gosh, I feel this. I don't wanna worry you, but did you know endometriosis can still come back/cause pain, even after a hysterectomy? 😬 Hopefully that's not the case, but I figured it was worth mentioning! It's scary enough to have to go to the ER, but when they don't have an answer, it feels even scarier (to me, at least). Your pain is valid!! 💝