What kind of work do you find you're able to do? I'm working from home currently and still find it difficult to get through the work week or work day. Between the pain, depression, anxiety, and brain fog I'm worried I won't be able to keep working.
Chronic Generalized pain
Anxiety (Including GAD)
I am having the same experience and would love to see the answers to this! So sorry youre also going through this 🙏
I work in a psych hospital for kids. It's constant go go go. You only get to sit for maybe a hour out of a 8-12 hour shift. It make me so sore after a couple of days that I end up calling in at least once a week. Then I feel bad like I'm no help and just shouldn't be working. I have days were there is so much pressure in my head I feel drunk for no reason or like I'm just going to fall over. And that will last for days. It really makes working hard. And it sucks I used to pull 70+ hours a week and loved it. Now since getting fibro I'm lucky If I can make it to 40+ hours.
thank you for your answer. I'm scheduled for 40 right now, but I also find myself calling in on a near weekly basis. Trying to improve by cleaning up diet, but afraid it may not be enough.
My best answer is to have a plan B. I nearly worked myself to death at the expense of my body. I could barely function on a level to meet my basic needs like eating and showering because I'd be absolutely mentally and physically spent from pain and fatigue after work.
5 years into Fibro I began to get significantly more ill and have had several more diagnoses added on. I finally got to a point where I couldn't do it anymore. I had been only managing less than 10 hrs per week so I quit. I had my phone disconnected and my bank account closed. I could no longer drive safely and without pain so I had to quit that also and sold my car. My partner of 7 years left me and I had to move in with my dad. I rely on food stamps and Medicaid and transportation services.
It's been 5 years now since I quit working and driving. I've been fighting to claim disability benefits for 2 1/2 years. Some time in the next month I should have a decision. It has not been easy, but I've managed.
I'm 31 BTW and was diagnosed with Fibro 10 years ago.
I am office manager/reporter/typist/photographer/ad designer for our local newspaper, I have days where I barely survive, and some days I have to call out due to fibro fog and pain. I can do most of my job from home if need be, but even that is unmanageable on bad days. I am having more bad days more often lately and it scares me.
I am an Autism Teacher Lead who works at four schools each week. It is grueling but I just keep telling myself I am not injured no matter how much I hurt. I have to keep going. I rest at home and it’s hard to not feel lazy. I use warm Epsom salt baths and ice packs for pain. I call friends or reach out to them when I am having a particularly bad day. Not everyone understands but they listen.
I am a retired RN, diagnosed 24 years ago. Initially, there weren't a lot of meds available for treatment. I worked for another year, then took 3 years off. We moved to San Diego and did very well for a few years in that wonderful climate, and resumed working. After 6 years, though, I couldn't get through a work week. I was doing acupuncture, chiropractic, and massage every week. It wasn't enough. I quit working and filed for disability. I haven't worked since 2006.
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