Loneliness and Pain on Disability

LaurElizabeth

206d

Been on disability for almost a year and it has been so damn lonely - my significant other was off the past week from his job and I am so nervous about him going back to work in the morning because I will be alone again. I also have a lot of pain due to my lupus and fibromyalgia- recently more headaches as well. People think it is fun to be at home all the time but it is really so isolating… not to mention being in bed a lot is not fun and you feel useless sometimes (at least I do) Not sure how to deal with this. : (

3

28

6

Anxiety (Including GAD)

Systemic Lupus Erythematosus (SLE)

Depression

Fibromyalgia (FM)

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Top reply
    • UPPERCaseGentleman

      194d

      @LaurElizabeth 🤗

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    • Lolita

      200d

      What helped me with my fibro was low intensity exercise

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    • amandasnyder588

      200d

      I'm sorry you feel lonely, it can be hard.

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      • LaurElizabeth

        200d

        @amandasnyder588 Ty so much 💕

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    • cabezacansada

      200d

      I am in the exact same situation. I (unexpectedly) got pregnant and was terrified, especially being on my own during the day, that I wouldn't be able to handle the responsibility. It was helped me keep a routine (though at times it's quite difficult). But I find having a personal routine at home (while still being flexible) is helpful. I also do a volunteer work helping teach others the Bible online. I can do it when I feel well enough, and skip it when I need to rest. It helps keep me connected to other people and focused on helping others.

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      • LaurElizabeth

        200d

        @cabezacansada ty so much

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        • cabezacansada

          197d

          @LaurElizabeth I hope this isn't inappropriate but message me if you want to do a flexible Bible class online. There's never any pressure and it can be as little as for 5 minutes. That might be a good way to start getting some contact with others.

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    • skooshy

      200d

      Hi LaurElizabeth! I completely understand how you feel. After 2 1/2 years of working from home, my husband switched jobs and now has an office as well as doing field work when needed. The last 6 weeks has been rough for me adjusting to no one being at home with me (other than my 3 puppies and cat) especially when I am having a flair up from fibromyalgia or my porphyria. I am thankful I have two of my kids who can help with some of my responsibilities when I can't do them. It is very lonely having a chronic disease and yes does make you feel very guilty for the things you can no longer do. I read a lot and have joined different reader facebook groups for interaction. I have a couple of good friends I have met that way and it does help. I am glad you are here and if you ever need someone to talk to, please feel free to message me!

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    • BeanBetter

      200d

      You can talk to me anytime 😊

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      • LaurElizabeth

        200d

        @BeanBetter same!

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    • lostinwonderland

      200d

      I am on disability too and the loneliness contributed to my condition. I went back to work part-time. You can work part-time and make up to 1200/mo. The amount increases each year. As long as you stay under that amount and report your earnings online each month, you will keep all of your benefits. It has helped me tremendously to be able to get out, earn some money, and feel "needed" but keep it part time so I do not get overwhelmed and end up having to quit or get fired.

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    • LaurElizabeth

      199d

      Ya I definitely want to go back to working something soon part time

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    • sorenachy

      199d

      Or even volunteer somewhere. I know in my tiny town the health care center and nursing home are almost always looking for volunteers to help with meals, read to those that don't get visitors, etc.

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      • LaurElizabeth

        199d

        @sorenachy thank you so so much

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    • Foxlover

      199d

      I’m sorry I have fibromyalgia too, I know it’s not fun. Maybe listening to some calm music will relax you, l like doing art to keep busy for a few hours. I hope you find something you like.

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      • LaurElizabeth

        199d

        @Foxlover thank you so much if u ever need to talk feel free to message me fibro is a hard thing to deal with

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    • Xylns86

      199d

      Spend the time learning something new

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      • LaurElizabeth

        199d

        @Xylns86 great idea thank you 😊

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      • LaurElizabeth

        199d

        @Xylns86 I’m going to try to look into some things

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    • LaurElizabeth

      199d

      Ya it is a great idea and it is something I do enjoy but idk I been trying to volunteer for a local dog/animal rescue I did it once for a few hours ……and was in bed for 2 days after :[ but I still want to try more! I loved spending time with the dogs 🐶 and it was nice to be out and social more I rele did enjoy it

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      • Xylns86

        199d

        @LaurElizabeth start slow

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    • Trudie_tootie

      197d

      I understand a lot. I talk to a lot of people online though. Le a ve messages and watch videos. Its not the same but it is SOMETHING.

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      • LaurElizabeth

        197d

        @Trudie_tootie yes same it does help a lot

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    • UPPERCaseGentleman

      197d

      @LaurElizabeth I am not sure if you are creative or do crafts or anything like that, but many women who work from home or stay at home make crafts or digital products and sell them on sites like Etsy. Not only does it enrich your life and give you something to do with meeting new people, but you can create a new source of income as well. It is worth looking into.

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      • LaurElizabeth

        197d

        @UPPERCaseGentleman thank you I’m going to look into that!

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        • UPPERCaseGentleman

          194d

          @LaurElizabeth 🤗

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    • Girlie9801

      197d

      Ugh! I know that feeling ALL to well unfortunately. I at 1 rime was so bad I would even keep my kids home from school with me. 😥 When my 16 year old went to live with her dad and then my husband went back to work, I was so scared. I didn't want to tell anyone because I knew what they would all say and how they would all look at me. Smh I'm slowly working myself back into things and it's so hard. I try to push myself to leave the house even if it's just to get the mail or take care of the trash. Prayers that thing's get better for you girl! 💕

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      • LaurElizabeth

        197d

        @Girlie9801 thank you so much baby steps for sure! Same to u

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