See Alike in...

Alike App

Browser

LemonZest22

308d

How do I know if I'm experiencing just chronic pain, Elhers Danlos Syndrome, or Fibromyalgia? How do I get properly assessed? I'm sick of being in pain with just guesses as to why.

    • Rosannabg

      295d

      Have you seen a rheumatologist? That would be the best person to diagnose Ehlers-Danlos or fibromyalgia. I had a fall on my teens & spent years back & forth to my gp / different consultants whilst frequently dislocating kneecaps before I was finally sent to a rheumatologist. She did the most thorough examination ever, including looking at how old scars had healed what my skin & eyes were like etc. She was the one who formally diagnosed me with Ehlers-Danlos.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Several people in the discussion suggested seeking a second opinion from another doctor, seeing a specialist such as a rheumatologist or geneticist, and not stopping until someone listens to you. One person recommended looking up the diagnostic sheet for EDS and filling it out yourself to bring in to your appointment. Another person mentioned using the Ehlers-Danlos society's webpage as a resource for finding EDS aware doctors in your area.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion