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Lunarr

560d

For once I feel really good about my care plan!! I was misdiagnosed for 4 years because local doctors didn't understand what was wrong with me and some of the things they had me doing were actually more harmful than helpful because they thought I had something else. But now that I know I have ME/CFS and orthostatic intolerance instead of any number of vague other dysautonomic diagnoses I've had, I finally know how to care for myself. Got some new med suggestions as well as physical therapy (vestibular rehabilitation for persistent postural dizziness) I'm trying to line up and it feels so so good to finally have a plan that sounds like it will work!!

Top reply
    • Letter

      272d

      Awesome, I will have to look up vestibular rehabilitation. Thank you for sharing

    • Letter

      272d

      Awesome, I will have to look up vestibular rehabilitation. Thank you for sharing

      • Lunarr

        272d

        @Letter Vestibular rehab was super helpful for my dizziness, I hardly if ever notice it as a symptom anymore after doing the therapy once a week all summer!! If you're going to try make sure your PT is familiar with ME/CFS or at least central sensitization so they don't push you too hard or too fast. I'd be happy to discuss my experience in more depth if you'd like

      • 55isMe

        272d

        @Letter Eye Movement Desensitization and Reprocessing (EMDR) is another similar term. Mine was for vestibular migraines. Works!!!

    • MyMelody0820

      560d

      It's very refreshing to hear somebody with such good news! I hope these good feelings follow you and everybody on this app into the new year 💖

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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