AnonymouslySick

224d

I have neurocardiogenic syncope. It is usually triggered by immediate drastic temperature changes (such as hot shower to cold bathroom) or physical exertion in heat (standing in line when it is hot). My ears get this ringing sound and sound gets muffled. I get really hot, my heart rate increases, and I get extremely nauseous. My vision starts to narrow/tunnel and get fuzzy around the edges. I get extremely pale and need to sit immediately or risk passing out. This used to be daily but now just occasional. Has anyone experienced this, and if so, any suggestions/ideas for how to reduce episodes, especially when your trigger cannot be avoided?

Recurrent Syncope

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  • wise

    222d

    I have the same issue! I was started on beta blockers for a different heart condition and it helped to control the syncope episodes. I still have episodes, but they're not as frequent or as bad as they used to be. As far as triggers go, do everything you can to reduce the impact of unavoidable triggers. put a space heater in the bathroom when you shower so the room isn't as cold when you get out, always carry a small fan and/or a bottle of water, wear lots of layers, just small stuff you can do to hopefully make the syncope a little easier to deal with

  • MammaCookie

    133d

    Yes! I have a few ideas that helped me dramatically! If you haven't seen a neurologist, do so. Water alone isn't enough. Find an add in powder high is salt such as Liquid IV. Unfortunately they are a little pricy. Do an analysis on other areas of your health such as you sleep schedule, physical activity, and mental health. My heat sensitivity decreased after a few sessions with a really good therapist. The trigger is real, but my fear of heat also brought on more reaction that was required. My life because almost normal when I finally achieved overall good health. Unfortunately if feels like I'm walking a balance beam, if I forget to exercise, or eat a big surgery meal, it fall off and suffer. But I recognize that my condition is forcing me to live healthy and all humans should be doing that anyway.

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