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Living with Extreme Syncope: My Struggle for Answers

Stacyda30

541d

Hello, my name is Stacy. I am 39. I have extreme syncope. I am passing out sometimes 10 times a day. The doctor's don't know what is going on. I am unable to work, drive, and be left alone. This is causing severe depression for me as well. I probably give myself a concussion at least every two weeks from passing out and hitting the floor. I lost my health insurance because I am unable to work. I don't know what to do.

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7

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Recurrent Syncope

Restlessness and Agitation

acute lethargy

Low Mood

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    • Stacyda30

      537d

      @Bri4937 Sometimes I can feel it coming on, I get very tired before hand and really tired afterwards. I'm also very dizzy. Now even when I move my eyes I get this weird feeling in my head and extremely dizzy. Unfortunately I don't have health insurance anymore so I'm kinda stuck. I can't keep living like this much longer.

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    • MomofRock

      539d

      šŸ˜„I'm so sorry to hear this. The majority of Mt Syncope was due to gastrointestinal issues. I'm on Benefiber at least once a day, sometimes twice a day. I'll be praying!!!

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    • Stacyda30

      540d

      They are completely random, I will pass out even when I'm sitting down.

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      • Bri4937

        537d

        @Stacyda30 that rules out orthostatic related syncopes which includes most of the dysautonomias except vasovagal syncope. I have that and I get episodes sitting down as well. I found a YouTube video of someone who sounds very similar if you want me to message it to you. Have your doctors ruled out vagus nerve dysfunction or a neurotransmitter imbalance? Iā€™d be interested to know if you feel alert before a spell or if you feel calm/tired.

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        • Stacyda30

          537d

          @Bri4937 Sometimes I can feel it coming on, I get very tired before hand and really tired afterwards. I'm also very dizzy. Now even when I move my eyes I get this weird feeling in my head and extremely dizzy. Unfortunately I don't have health insurance anymore so I'm kinda stuck. I can't keep living like this much longer.

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    • Bri4937

      541d

      I have vasovagal syncope and I have periods where I go months without an episode but now I have been having them daily for the past few months and canā€™t be left alone or drive either. Beta blockers helped a little but prozac was the biggest help for me. Does yours get worse with certain triggers such as leaving the house, standing, or heat? Or is it completely random?

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    • gastro_sleepy

      541d

      Have you had a tilt table or( this will sound weird) G.E.S test done?

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      • Stacyda30

        541d

        @gastro_sleepy Yes it was normal, my eeg, brain mri, and heart cath were all fine. The only thing the heart cath showed was small vessel disease. I am even taking a pill for syncope and it's not working.

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ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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