seejay

318d

i’m cj, i’m 18 and am non-binary. i have adhd and last year i was diagnosed with tics and BPD! i’m pretty new to tics and bpd and still have a lot to learn :)

Chronic Tics

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  • kellbell

    318d

    Hey cj! Whatever questions you have I can try to answer! Mine started pretty young and my tics are kind of only centered around my fingers and toes. I really feel like my tics are probably because of my ocd. My whole life I would tell people that my toes we're claustrophobic. So my tics are more just like I have to rub my fingers or toes against each other until it feels right or like it's in the right place, it's hard to explain, but I sought help for it when I noticed it would happen when I was driving (my toe tics usually happen when I'm in shoes) and it would be driving me absolutely bonkers and then I would have to do the tic for a while until it felt "right" and sometimes I would have to slam on the breaks at the last minute, that's when I knew I needed to at least look into it. I'm also a dancer and it would always be worse in my jazz shoes or tap shoes and it would make my foot cramp from doing the tic in the shoes and then I would get those severe cramps where you can't step on it. I haven't found anything that really helps my hand tics although sometimes lotion helps bc instead of my skin sticking and having that weird sensation, it glides against the other fingers and makes me do a smaller amount of the movement, but with my toes I've found that if I lotion my feet and esp between my toes, and then wear super thin socks, it doesn't bother me as much. For me it's definitely a sensation thing and I feel like the anxiety surrounding it is from my OCD so idk if I can help you much if you have a different type of motor tic but that's just my experience. It definitely gets worse in time periods of my life where I'm more stressed, like it's been worse lately after being barely there for months. Sometimes when I talk about it, it makes me do it more impulsively too.

  • royalty

    318d

    Hello! It's nice to meet you! I also have tics and BPD. Except my tics are caused by Tourette's Syndrome. I also have a lot of other things going on but I'm hanging in there and I'm slowly figuring things out. Good luck on your journey and I hope everything turns out alright!

  • seejay

    318d

    i’m not sure if this will be a reply to you, but anyways that’s so interesting the way your tics are ig? i’ve never considered that they could affect people in that way. mine i guess would be the more typical case. i started having them in august and while a neurologist says they were caused by tiktok(this highly frustrates me and i don’t think it’s true in the slightest), my therapist believes that they could be a response to trauma. i have mostly verbal tics(with lots of them being inappropriate) and some motor tics.

  • Kendoll

    318d

    @kellbell woah, i had no idea the toes thing wasnt normal. I do that when im driving too. Its messed me up a few times. I thought my “carelessness” (actually very car anxious) was just adhd.

  • kellbell

    317d

    i've heard that it's the latest thing for tics to be "caused" by tiktok. i think some people are definitely doing it for attention but it's making it worse for people who do actually have real tics. i will say though, it can make your tics flare up more if you watch people who do on tik tok or see someone having a tic or talk about your tics. like when i try to explain mine to someone, it makes me do it and i try to suppress it bc it's embarassing esp while i'm talking about it but i usually can't stop, i think maybe because of the stress of telling someone ab it

  • seejay

    317d

    @kellbell i definitely agree with you, i have friends at my school who have tics as well and typically when we are around eachother our tics can kind of bounce off of eachother. that’s usually only if we have p bad tic days though. it was especially frustrating as i am young, and as a result so much of my issues are blamed on “my damn phone”, and while it’s not always helping, there are other problems that are more productive to focus on, yknow? my neurologist spent half an hour complaining ab social media and how it’s the devil instead of giving me an actual diagnosis cause that would be a “waste of time” neurologist genuinely call it the “tic-tok” pandemic there’s even more that i could comment on but that’s all i will say for now

  • kellbell

    316d

    yeah and it's more hurtful than helpful to blame it on tiktok bc it places the blame of an already shameful diagnosis on you instead of it just being a disorder that you're having to deal with. and for a lot of us with a lot of health conditions, social media is an outlet for us to feel heard and not dismissed like how your doctor treated you. i'm sorry that happened! i would see another doctor and start by saying, this isn't from tik tok, i have a condition and i need help to try to get better.

  • Kendoll

    316d

    I cant imagine a doctor saying that to my face. Id about punch them. My tics are a daily struggle for me, on top of all the other social issues i have. Theyre not fun. I dont want them. Why would i see someone making an obvious mockery of them online and want to be like that

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