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685d
I just wanted to share a small celebration :) I had an incredible appointment this week at a big research hospital out of state. They assigned me a team of five doctors who are experts in the field, and they are really committed to helping me feel better. They were all so kind and compassionate. I finally feel like I might be able to make some progress with my health after so many years of decline For everyone reading this, I hope good doctors and symptom relief are coming your way š
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Ehlers-Danlos Syndrome (EDS)
Edema & Anasarca
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677d
@BoomerangValentine I would love to hear an update on the general advice they give and on the things that have worked for you!
0
682d
Johns Hopkins! The hospital seems to have a lot of EDS resources :)
3
What hospital? I havenāt found any good docs for EDS and stuff.
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Can u tell me where this hospital is located?
683d
This is amazing ā£ļø so happy and excited for you! I am hoping you find the treatment/management you need to live a better quality of life. Keep us all posted with your progress š
684d
I love this! Having a team that listens, validates, and genuinely wants to help makes all the difference. Do you mind sharing what research hopsital?
ā¤ļø
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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