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TINAMARIE85

487d

Good evening, y'all! I just got a final hEDS diagnosis this morning. I'm pretty much already on a regiment that one with the diagnosis would receive. But, as we all know, having the actual diagnosis can change so many things in & out of the Drs office! & for that, I feel so blessed! I can't wait to connect. I've been having a bit of a rough patch here lately... & it's pretty hard to get me down! God bless you all! πŸ™πŸ½πŸ₯°πŸ«‘πŸ€—πŸ«ΆπŸ½

Top reply
    • TattsCatsNaps

      467d

      So happy for you! It can honestly feel like a weight is lifted can’t it πŸ’• ❀️

    • TattsCatsNaps

      467d

      So happy for you! It can honestly feel like a weight is lifted can’t it πŸ’• ❀️

    • TINAMARIE85

      468d

      I've found that drinking some mineral oil & making sure that my constipation/impactions don't back up back-to-back (like they usually do) really helps with my GERD & SNUFFLEUPAGUS issues (that's what I call my esophagus πŸ˜†). Plus, I have LACTOSE & as a backup, LUBIPROSTONE! πŸ˜‰πŸ™πŸ½

    • TINAMARIE85

      485d

      I'll look that up right now, thanks! & Yeah, I'm not able to take steroids anymore due to my Adrenocortical Insufficiency... πŸ₯ΊπŸ˜­πŸ˜­πŸ˜­β˜ΉοΈ It used to be I could take a Prednisone taper pack & it would really help jump start me OUT of a flare-up. 😞😞😞 Thanks for that suggestion. πŸ™πŸ½

      • CriCri

        481d

        @TINAMARIE85 no worries! Let me know how you get on. I am having gastric issues with anti inflammatory meds and even the omeprazole that protects the stomach so I'm at a loss and desperately looking for natural medicine that will help. Only at the beginning of the Cusack Protocol but I'm keeping hopeful since so many people's lives in that group have been changed by it...there are so many supplements you can integrate based on your symptoms which I think is great

    • CriCri

      485d

      So happy for youπŸ™ I'm just starting the Cusack Protocol, if you haven't heard of it look it up! I've been having a terrible flare up since getting Covid a month ago...the pain in my joints is unbelievable like the worst flare up I've ever had. My physio suggested steroids but sticking to diclofenac and pain relief seems to be helping

    • Abbe

      487d

      So happy for you!!

      • TINAMARIE85

        486d

        @Abbe πŸ€—πŸ€—πŸ€— Thank you! It feels so good to be seen! The amazing thing is my PCP figured it out! He didn't give up on me, gave me extra time in our appointments... He's a regular 'Dr. House ' that guy! πŸ™ŒπŸ½πŸ™ŒπŸ½πŸ™ŒπŸ½πŸ™ŒπŸ½πŸ™‹πŸ½β€β™€οΈπŸ₯°πŸ‘¨β€βš•οΈ

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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