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455d
I am diagnosed with MCAS, but based on my continuing symptoms & their presentation a Dr recommended I push for additional testing to rule out systemic mastocytosis. Currently waiting my results from KIT D816V testing. Wondering if anyone has had a similar experience. Did you pursue the bone marrow biopsy? TYIA 🙏🏼
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Mast cell activation syndrome
Systemic mastocytosis
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452d
Hey! I am experiencing a lot of weird allergy/asthma symptoms and would like you hear your story.
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