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yellowcheddar

764d

hi i have mast cell activation syndrome. any idea of things to do to block these mast cells,.

Top reply
    • MCADBox

      304d

      @mommy2angelina Blood ( Plasma) Histamine Test. My allergist can order or my specialist even though it falls under allergy/immunology but most conventional docs don’t even know that.

    • wheely_kismet

      320d

      Treatment for MCAS is extremely individual due to our varying sensitivities.

    • MCADBox

      334d

      It depends on you mediators if you have been tested( the tests aren’t perfect but there something) and response to medication. I have come along way from 110 plus histamine blood level and now I am at 11 and getting close to a normal level. Let me know if you have any questions as I have tried a lot of different things to get this far and always willing to share m.

      • mommy2angelina

        322d

        @MCADBox what test is that

        • MCADBox

          304d

          @mommy2angelina Blood ( Plasma) Histamine Test. My allergist can order or my specialist even though it falls under allergy/immunology but most conventional docs don’t even know that.

    • psw

      585d

      Diaries of what you eat, meds taken etc help. I have been on many elimination diets etc. I kept lists, documented when symptoms were worse and looked over the lists monthly to see trends. I identified cellulose as a major trigger. Once I identified my major triggers, I try to avoid them. Being a veteran, my health care can be shoddy. The va was assigning me new primary care dr every 6 months. It really set back trying to find diagnosis and continued treatment.

    • Lhamo

      664d

      To stop the mast cells from over producing inflammation mediators like histamine it’s helpful to know the underlying causes of what’s causing them to be overactive in the first place. Do you know what the underlying causes are?

    • Cathryn

      743d

      It took some time to be diagnosed with MCAS. It took two different allergists to finally come to this conclusion. I was a mystery for a while but the MCAS was a diagnosis the docs were hearing more and more about. I began to research on my own as well. It was a good day when I was told ‘This is what is wrong with you and why you keep ending up in the ER.’ The very best thing I have taken is an H1 and H2. For seven years my ‘system’ seemed under control. I was taking Xyzal (H1) and Xantac (H2). Then Xantac was recalled. Xyzal also began giving me a hangover. All antihistamines do. I stopped suddenly and have tried to use a different combo as needed: my H1 can be Benadryl, Zyrtec, or Allegra and my H2 is Pepcid. Nothing has ever worked as well as that first combo years ago. My allergists warned against me using the H2 meds long term. So I typically use Benadryl and Pepcid as needed. I watch my diet closely, try to avoid stress, try to avoid being in the heat too long, and use a low dose of prednisone if I need help in clearing up hives (this is not very often). MCAS is like hypothyroidism in that they are a curse to have. After 9 years, I’ve settled into a pattern, a lifestyle, where I can usually keep my histamine level low enough that I won’t have an attack. Usually.

    • DysUnicorn

      764d

      I am trying histaquel as recommended by functional med doc

      • yellowcheddar

        764d

        @DysUnicorn Thanks!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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