See Alike in...

Alike App

Browser

Melmo27

795d

I think I need a new cardio mine that I just got told me pots has nothing to do with heart rate only blood pressure. Salt has no effect compression socks are a waste of time and hydration doesn’t effect it either way. Basically opposite of everything I’ve been told

Top reply
    • vee805

      791d

      Samhain, I ain't here trying to argue about it with you. Clearly you are the pots specialist here lol.

    • vee805

      791d

      Samhain, I ain't here trying to argue about it with you. Clearly you are the pots specialist here lol.

    • SAMHAIN

      792d

      @vee, either something is wrong with the grammar in your response, or you contradicted yourself. A bit lost, but I get your energy more than your words. Sorry Daddy

    • Java

      793d

      I have only ever seen a neurologist for POTS (I have the more broad version called dysautonomia with more neurological components). Have you ever seen a neurologist for your condition?

    • vee805

      793d

      Samhain, yes that's how pots works for everyone as far as pooling in the legs go and the blood not traveling upwards. Yes sometimes blood pressure doesn't change, but also it can drop or rise for most as well. They kinda go hand in hand. Whether you have eds or not. I'm specifically talking about pots and how it can affect the body.

    • SAMHAIN

      793d

      Pooled*

    • SAMHAIN

      793d

      Not 100%, vee805. If someone has EDS and pots, sometimes when they stand and get lightheaded it may not be from the pots itself, but it may be from their veins stretching out and causing a longer distance from the blood that pulled in their extremities to travel to their brain, resulting in lightheadedness without the spike and blood pressure but still a loss in brain function. Your Meatsack May Vary 🙃🙂

    • vee805

      793d

      Heart rate will always be associated with pots. And everyone eith pots will either have high or low blood pressure at the time that their HR increases. Some have both.

    • SAMHAIN

      794d

      @LindsJ 👑

    • Sophg

      794d

      andergenic *

    • Sophg

      794d

      I believe this is known andregenic pots. Look into that

    • ForceMajeure

      794d

      Blood pressure issues can occur in people with POTS, but it’s an entirely separate issue. By definition, POTS requires fast heart rate - that’s the “T” in POTS. You could still have autonomic issues if you had low/high BP without tachycardia, but it wouldn’t be POTS. Time to find a cardiologist who knows what they are talking about.

    • SAMHAIN

      794d

      Mine does all 3?

    • jazz1987

      794d

      Yes there's basic pots only heart rate Then the one with blood pressure issues And lastly the one triggered by messed up adderaline like when y stand up it triggers u to go into fight mode for no reason

    • vee805

      795d

      Unfortunately doctors still aren't super educated on how pots works. I have been thru 4 cardiologist and I'm the one who pushed this dr to check me for it. He told me no he didn't think thats what it was at first and 4 months later I pushed for it again..took 2 and a half years to finally get diagnosed. I would definitely keep looking. Even try a neurologist if you have to

    • SAMHAIN

      795d

      Wait, 3?

    • jazz1987

      795d

      Yeah get a new doc there are 3 different types of pots

    • SAMHAIN

      795d

      So, this is the introduction to chapter one of "How I Switched My Cardiologist," right?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion