See Alike in...

Alike App

Browser

Melby

756d

Hi, everyone! I have secondary adrenal insufficiency due to long term use of prednisone for an autoimmune disease. I really want off the prednisone so my endocrinologist is trying to work with me. She said no promises but we could try. I made it to 5mg okay but when I got to alternating 4 & 5 every other day I started to notice a difference in the way I felt. When I dropped to 4 every day, I have become so sick. I haven’t been able to get out of bed. She had me bump back up to 5. I’m so discouraged, not to mention feel like death. Have any of you experienced this?

Top reply
    • hafsah

      78d

      @Tita please can you give us the names of the. Natural supplements

    • Ashley_W

      745d

      I was a looooong time, high dose, prednisone user as a kid and it destroyed me. I have other chronic illnesses now with very similar overlap in symptoms, but I have struggled to ever fully get off. Even when I was off, for years, I kept telling providers that I thought I was dying. No helpful advice but you’re not alone!

      • Melby

        734d

        @Ashley_W Sorry to hear about your struggles. I have several chronic illnesses too and don’t want more from the prednisone. I’m down to 4.5 & 4mg every other day but I am so nauseous 24/7. I called my NP today and she said adrenal issues won’t cause nausea but my endocrinologist said they would. Go figure lol. Seems no one is ever on the same page. If you ever want to chat, feel free to message me. Sounds like we have a lot in common. Thank You for responding

        • Dorene

          714d

          @Melby hi, sorry 🙏, u havin struggle. Nasauea can b if u dont eat with the prediz.

    • Tita

      749d

      I never took prednisone at all I don’t know how I got this desease?

    • Tita

      749d

      I can’t do this without it so far I’m new to this but I do take supplements with it that helps me a lot They natural adrenal supplements

      • hafsah

        78d

        @Tita please can you give us the names of the. Natural supplements

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion