Struggling with Endometriosis Diagnosis and Coping with Pain

It took me 5 doctors who told me I was "overreacting" and "sensitive" until I demanded to go to a GYN doctor. He was the first one to do tests and do hands-on exams. He was the one to tell me I had severe endometriosis and PCOS. It's a messed up world out here, you gotta be loud. I got nowhere for years until I finally got fed up and got loud. Be firm. Be loud. You deserve better.

19 took 5 years though for a doctor to listen to me and send me to a gynecologist. Took them over a year to finally diagnose me after performing surgery.

I was finally diagnosed at 21 after suffering many years bc gynecologists did nothing to try to figure out what my issue was. I work a very fast paced job that requires full attention and after 16 surgeries (over the next 10 years after being diagnosed) I am now able to understand this disease, extensively. It’s not fun at times but knowing the issue, addressing it, and living with it now for many years I have found ways to get on with life. Any questions someone may have I am happy to respond to. 🙏

Will I got diagnosed when I was 14 when I was having so much bad bleeding I almost bled to death because they could not get it under control it took them over 6 months of iron transfusion to finally get my blood level back to normal.

I always had really bad periods, but it wasn't until March 2020, that it started to get really bad. I was 16 when I got diagnosed in November about 9 months later. I went to 2 ERs in one week, and visited my PCP, a GI doctor, and. Adolescent care specialist. I finally saw my gyno in I think August? She's amazing. I had my excision lap, and I have stage 1 endo. and as for the last question, I don't know 😭😭😭 it's hard.