Skelliosis

247d

How old were you when you were officially diagnosed with endo and how did you get your doctor to listen and get the referrals and such needed to get the testing done and how long did it take? how have you coped while working on your feet in a fast paced environment? how has it impacted your relationship(s) and is a healthy sex life possible even with the pain? and what tf did we do to deserve this constant pain!? 😭

Abdominal Distention

Endometriosis

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  • Phattieinphilly

    247d

    I always had really bad periods, but it wasn't until March 2020, that it started to get really bad. I was 16 when I got diagnosed in November about 9 months later. I went to 2 ERs in one week, and visited my PCP, a GI doctor, and. Adolescent care specialist. I finally saw my gyno in I think August? She's amazing. I had my excision lap, and I have stage 1 endo. and as for the last question, I don't know 😭😭😭 it's hard.

  • Maddisen

    245d

    Will I got diagnosed when I was 14 when I was having so much bad bleeding I almost bled to death because they could not get it under control it took them over 6 months of iron transfusion to finally get my blood level back to normal.

  • hazyeclipse

    245d

    I'm not officially diagnosed but the couple of doctors I've seen about this were pretty sure I have it based on symptoms. I was first told at 18. I can't afford any treatment though so I take birth control to stop my periods at least

    • Maddisen

      245d

      yeah it took me a year to find a birth control that stopped my bleeding. I take Junel FE and that’s the only kind I can take not even the off brands or I start bleeding and it takes awhile for it to stop

  • KatoLizbet

    245d

    I was finally diagnosed at 21 after suffering many years bc gynecologists did nothing to try to figure out what my issue was. I work a very fast paced job that requires full attention and after 16 surgeries (over the next 10 years after being diagnosed) I am now able to understand this disease, extensively. It’s not fun at times but knowing the issue, addressing it, and living with it now for many years I have found ways to get on with life. Any questions someone may have I am happy to respond to. 🙏

  • Ellie2000

    244d

    19 took 5 years though for a doctor to listen to me and send me to a gynecologist. Took them over a year to finally diagnose me after performing surgery.

  • DocGabe

    244d

    It took me 5 doctors who told me I was "overreacting" and "sensitive" until I demanded to go to a GYN doctor. He was the first one to do tests and do hands-on exams. He was the one to tell me I had severe endometriosis and PCOS. It's a messed up world out here, you gotta be loud. I got nowhere for years until I finally got fed up and got loud. Be firm. Be loud. You deserve better.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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