See Alike in...

Alike App

Browser

orangeblossom

639d

hello! i have not been diagnosed yet but i fear that i will be this month. my mother had it and we believe i do as well. could anyone share how or what they felt that made you want to look into your symptoms more and led to the diagnosis?

Top reply
    • Mop

      624d

      I would start having terrible cramps about a week before my period, the period would last more than a week, and then I would continue to have terrible cramps for about a week after I stopped bleeding. So I was nearly in constant pain, but I thought it was normal and I just had a low pain tolerance. One time the pain was bad enough to cause me to faint and throw up, so my mom asked my if I had any clots in my blood and took my to women's health right away when I described how big they were (which I also thought was normal) that's my diagnosis cause story.

    • Mop

      624d

      I would start having terrible cramps about a week before my period, the period would last more than a week, and then I would continue to have terrible cramps for about a week after I stopped bleeding. So I was nearly in constant pain, but I thought it was normal and I just had a low pain tolerance. One time the pain was bad enough to cause me to faint and throw up, so my mom asked my if I had any clots in my blood and took my to women's health right away when I described how big they were (which I also thought was normal) that's my diagnosis cause story.

    • 100Percent_K

      638d

      The constant pain I was in, cyclical symptoms, and how absolutely nothing helped any of it. Eventually went under the knife in 2018 and got my official diagnosis 💛

    • Kiki_Kiwi

      639d

      I was diagnosed last year. I always had very painful periods since i was 10 but I thought that was normal until it got worse. Last year me and my boyfriend noticed that all of our pregnancy attempts were absolutely failing. I explained everything to my doctor and that’s how I was diagnosed.

    • BusyB

      639d

      I was diagnosed 3 years ago when I had a chocolate cyst removed and it was diagnosed as endo. Another lump showed up and I had to have a hysterectomy and lump removal, but they got everything out so very little to no pain now!

      • orangeblossom

        638d

        @BusyB I'm so glad you have less to no pain now! I'm concerned about a cyst that a doctor found on a CT scan last fall that I didn't find out about until this past week because I've had recurring pain in that spot. Getting checked out this coming week!

        • BusyB

          627d

          @orangeblossom hey! Did you get checked out? Any results?

    • jamin90

      639d

      I was diagnosed and got surgery 2 years ago this August. My periods were so bad back when I was 16 I was almost passing out. My mom put me on birth control and later told me she had endo in her 20s. So my symptoms were mostly my periods. They were heavy, black blood, lower back pain, extreme nausea, dizziness if I hadn't taken pain killers yet, taking 6+ pills a day during period, 7 day long period, bad cramps that made me freeze but I couldn't be sitting down either and if I was then I had to hoist my butt to hover over the chair until it passed. Even though I was 90% sure I had endo at 16 I wasn't mentally ready for surgery and recovery until I was 20. The birth control actually helped quite a bit (less days bleeding) and surgery made my periods 100x better. Now I just take 1 pain killer for the first 2 days and the last 2 just chill. It has cut down on the bleeding, pain, just everything, and now my blood is red instead of black! But I had to fight tooth and nail to be heard by doctors. The local place just kept saying yeah what do you want us to do? And I just wanted anything to help. I found a specialist who heard my symptoms over the phone and asked why I hadn't had an ultrasound yet. You are your biggest advocate. Do not be silenced.

      • orangeblossom

        638d

        @jamin90 definitely! I am super big on never letting it go if you're in pain or highly concerned about something. Doctors don't want to believe anyone, especially women, when we say we're in pain cause they believe we have no pain tolerance. I'm glad you were finally able to get diagnosed and treated!

    • Spencer25

      639d

      I haven't been diagnosed either but i Definitely know I have it I changed my whole diet and it changed my whole life because certain foods flare up endo

      • orangeblossom

        639d

        @Spencer25 ooh do you have some examples?

    • MargoBegal

      639d

      I havent been diagnosed yet but i am in the process of trying to be! We’re in the same boat 🤩

      • orangeblossom

        639d

        @MargoBegal so glad I'm not the only one!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion