EDS is a monster that not too many people are familiar with. How do others with the diagnosis find support and/or cope? As time goes on and I get sicker I feel more isolated. Part of me is hoping that by joining this app, I will find a community that can be a positive support for one another as we deal with the daily struggles.
My faith has been the main thing that keeps me going. I also have joined a lot of different support groups on Facebook, and I have great friends who support me, as well.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Share
Copy Link
Copied
Join the Alike community
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
.svg)
.svg)
Rose93
255d
EDS is a monster that not too many people are familiar with. How do others with the diagnosis find support and/or cope? As time goes on and I get sicker I feel more isolated. Part of me is hoping that by joining this app, I will find a community that can be a positive support for one another as we deal with the daily struggles.
1
2
Share
Ehlers-Danlos Syndrome (EDS)
PreciousGazelle
255d
1
Niap
254d
0
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision