Looking for Support with hEDS

I feel the same I feel like I have 3 friends that if I need something would help but they are healthy and work and have normal life I don’t blame them but they rarely call or check any more. I get it I do text them some so I don’t expect them to always text me first but I have other “friends “ that have similar issues and I’m always checking on them but when I reach out they just aren’t there Sorry I’m having a feel bad for me time and going through depression and grief and aloneness

I’m just now looking into eds and I definitely know I need to go get a diagnosis. I’ve been isolating too. I’m worried about meeting new people and being the only disabled one. I don’t know how people will react :(

I’m the same I’m mostly home

I just found this app today. I don’t leave my house much unless I’m going to a doctor, pt, or taking care of my sick Mom

Hey! I’m new too, isn’t this cool? I definitely can understand where you’re coming from as I tend to isolate too.

Do you have fb? There are a bunch of EDS support groups.

It's hard to find people who get it. Glad you found us!