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SharkBlood23

594d

hello, everyone. I'm happy to try this app. I hope to find more people like me. My hEDS causes isolation and depression. I don't really talk to anymore near me about it because, they do not understand it. I hope to find people that understand me and possibly help others.

Top reply
    • Pugmamma

      587d

      I feel the same I feel like I have 3 friends that if I need something would help but they are healthy and work and have normal life I don’t blame them but they rarely call or check any more. I get it I do text them some so I don’t expect them to always text me first but I have other “friends “ that have similar issues and I’m always checking on them but when I reach out they just aren’t there Sorry I’m having a feel bad for me time and going through depression and grief and aloneness

    • Pugmamma

      587d

      I feel the same I feel like I have 3 friends that if I need something would help but they are healthy and work and have normal life I don’t blame them but they rarely call or check any more. I get it I do text them some so I don’t expect them to always text me first but I have other “friends “ that have similar issues and I’m always checking on them but when I reach out they just aren’t there Sorry I’m having a feel bad for me time and going through depression and grief and aloneness

    • Katnipp

      589d

      I’m just now looking into eds and I definitely know I need to go get a diagnosis. I’ve been isolating too. I’m worried about meeting new people and being the only disabled one. I don’t know how people will react :(

    • Pugmamma

      590d

      I’m the same I’m mostly home

    • Nonamae

      591d

      I just found this app today. I don’t leave my house much unless I’m going to a doctor, pt, or taking care of my sick Mom

    • Ty_Dye

      593d

      Hey! I’m new too, isn’t this cool? I definitely can understand where you’re coming from as I tend to isolate too.

    • QueenSmurf

      594d

      Do you have fb? There are a bunch of EDS support groups.

      • SharkBlood23

        594d

        @QueenSmurf Yes but I do not like the groups on Facebook it’s very disconnecting for me.

    • LeeannD

      594d

      It's hard to find people who get it. Glad you found us!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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