WhimsicalMushroom

115d

Does anyone else have orthostatic hypotension? The doctor apologized for ruining my day when he diagnosed me and I need some hope.

I've been upset for days over his response when he was saying he can't guarantee medication will work and that the only thing I can do is lifestyle changes and I'm just really sad.

Wheelchairs

Orthostatic hypotension

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  • tallgirl22

    115d

    I have it! Did he offer any medications or treatments? If you have the right treatment it can be manageable!

    • WhimsicalMushroom

      115d

      he didn't. He gave me some lifestyle changes to make but untimely was saying that there's nothing they can really do for it and to talk to my cardiologist

      • tallgirl22

        111d

        A cardiologist could be helpful! Just make sure you go to one who works with your diagnosis so they can be most helpful. I personally have orthostatic hypotension and POTS so I’m on a regimen with daily IV fluids which has really been a life saver for me but there should be other options as well if you see a specialist and need intervention.

  • MammaCookie

    97d

    Actually a lifestyle change is a revolutionary treatment for orthodontic hypotension. I desperately wanted an cure to make it all better, but when I started living the lifestyle all healthy humans should be living anyway, almost all my symptoms that prevented normal life went away. It took a few months, but now I have such mild symptoms. I just have to watch out for certain things every now and then. I left my diagnosis visit very discouraged but then I was humbled. Didn't I want to be healed enough to do the simple, daily tasked the doctors said I should? It still takes tons of diligence and self control, but I get to live a mostly normal life when I stay on top of it.

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