Dealing with Vertigo and High Blood Pressure

I have vertigo that I've dealt with for more than a decade. all the "normal" stuff is fine. my tilt table test was normal. But the neuro did an orthostatic test in the exam room one day because I mentioned I had nearly fallen earlier in the day. I went from a normal pressure to 117/170 upon standing. I know I need a new neurologist because there's several things I've experienced that he's unbothered by, including that. my blood pressure comes down when I rest again and my normal is within a healthy range, if not on the lower end, so for it to spike like that, well, it's a lot. it can happen when I'm standing, sitting, lying down, and sometimes turning my head triggers it but vestibular testing showed there's nothing wrong in my inner ears. Does anyone experience this and have they figured out why? I have fibromyalgia, cfs, hEDS, sleep apnea, and some other stuff. the vertigo is terrible.

Your answer

LoisPain

2y ago

You did not note you heart rate noted in your tilt table test. This is actually the determining factor of POTS. It is the " TACHYCARDIA" that make Postural Orthostatic Tachycardia Syndrome. Hypotension is only part of the syndrome or a symptom of but not the definition of it. I believe you also made a mistake in typing your BPnas you wrote "117/170". which I am quite sure is a type O as the diastolic (the bottom number);is always lower than the systolic (top number). If you can add these details It may be possible to have more accurate insight as to what maybe going on. I am sorry you are experiencing this as I know it is so frustrating to want answers and to understand what is wrong with you and not get the answers. 🙁

Kae92

2y ago

I'm going through the same thing. All my tests were normal but I get nasty vertigo daily and regular vestibular migraines. My doctors seem to think it's part of my hEDS, but can't find a way to treat it other than cutting back on working and other activities

Bleuphoric

2y ago

Have you had videonystagmograpgy (VNG) testing with an audiologist?

TiredBard

2y ago

yes and it was normal even though it felt terrible.

TiredBard

2y ago

POTS is hypotension, meaning the blood pressure goes down. I'm experiencing hypERtension when standing. It's not POTS but it feels exactly like I've seen POTS described :( and my drs aren't helping because my tilt table test was normal and my bp doesn't drop and my heart rate doesn't change the way POTS does so they are basically like "welp, the one dysautonomic thing we know about isn't it so it must not be dysautonomia" and just stopped trying to figure it out. I was sent to PT and that was that. :(

Sunshine79

2y ago

I had both. I want a second opinion as the heartrate confirmed my suspicion but the title table test and other diagnostic test I can't remember the name of, said no pots. Of course, they screwed up my line and sprayed my blood all over the room so I am dubious at best about my results.

Sunshine79

2y ago

✋I was told I get ortostatic hypotension which is similar to POTS. They told me I don't have pots but I am dubious. Though, I did recently learn that orthodontic hypotension can be a side effect of cymbalta.

TiredBard

2y ago

did they check your bp and heart rate upon standing or do a tilt table test?

Mikahrie

2y ago

maybe talk to your doctor about a trial of weaning off cymbalta to see for sure? Because if it’s not the medication, then you need to increase your electrolytes and water intake

Mikahrie

2y ago

Could you have POTS?

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