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Struggling with Hyperthyroidism and PCOS: Need Advice

moonchild6

722d

Im 25 years old and i've recently been diagnosed with subclinical hyperthyroidism/graves and PCOS as of late last year. my fiance and I were going to start trying for a baby when I got the diagnosis' therefore putting an end to that until it's under control. I've been to 2 endos and currently waiting for an appt with a third who will hopefully take the fact I want to start trying for a child asap because I know its going to be harder for me especially with the PCOS. I guess I just want to know if anyone else struggles with both conditions and to hear your stories.. I'm beginning to lose hope and I want nothing more than to be a mother, but not at the risk of the baby.. any and all comments are welcome and encouraged.

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Graves' Disease

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    • Bdizzle

      708d

      @Lots_of_ish what is pcos???

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    • Lots_of_ish

      717d

      It is important to treat the graves since there can be complications with your heart. Treatment for graves is essentially destroying your thyroid (radiation, surgery, or medication). Most people chose radiation. I thought surgery was my best option. Now I don’t have children but I would like to one day and asked a lot of questions during the process to treat graves. After the thyroid is treated (or destroyed) you’ll need thyroid hormones replacement. Now what is super interesting is that when a woman is pregnant she is producing more hormones… soo during pregnancy a lot of women take a lower dose of thyroid replacement due to the circulating hormones. I know PCOS complicates things. But it’s important to take care of yourself so you can be happy and healthy for a baby. I wish you the best of luck and an easy process through it all.

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      • Bdizzle

        708d

        @Lots_of_ish what is pcos???

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    • HippieChic

      721d

      Me too I took the radiation and it completely destroyed/killed my thyroid gland, the doctor gave me too high of a dose and shortly after about 3 months later I ended up getting pregnant but unfortunately I had a very difficult pregnancy with so many complications and the baby didn't make it, I delivered her at 8months (stillborn) and bless her tiny Lil heart because of the high dose of radiation in my body it caused her to have burn marks on her skin..SMH its so sad and its been very difficult to cope with even 14 yrs later so my advice because of what I went through is if u have a thyroid condition make sure u understand how high risk u and the baby will be and understand all the complications that may a cure also find the right doctors because thats where I messed up, I feel if I had only gotten a second opinion and found a better doctor that maybe my baby would be alive today..

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    • MichaelNavy

      721d

      Made my testosterone go down to a 90 year old man. I was very young when I was diagnosed. 1998 Im 55 and still have huge issues ,sexually, and physically.

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    • complexityjd

      721d

      I had 3 rounds of RAI at 16 . Killed my thyroid. The best thing I can tell you is to make sure you have a good endo, and to maintain or lose weight as possible. Pcos is definitely hard to manage with no thyroid. I have been struggling for 15 years to try and conceive.

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      • Angiebear35

        719d

        @complexityjd do you feel like you found the correct synthetic thyroid replacement dose or do you still struggle with symptoms like fatigue or hair loss etc? I am looking into total thyroidectomy...

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      • moonchild6

        721d

        @complexityjd I know there's a diabetes medication my doctor was telling me about for the PCOS , but my testosterone went from 75 to 90 in 2 months with no explanation! I haven't had a period since January, I stopped birth control last year in June and my cycles were abnormal but I was still at least getting a period until January when they stopped completely. I have no sex drive, my facial fuzzys got long enough to where I have to shave my whole face, and I'm bloated just about all the time on top all the symptoms from the graves and I'm just so over it. Over not having answers, or a solution or anything... I just want to be healthy and I feel it all started after stopping the birth control I was on for 10 years which makes me wonder if that had anything to do with it

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        • MichaelNavy

          721d

          @moonchild6 , thanks for sharing. Maybe for Men is different but the same. Our bodies still needs our thyroid and many other hormone affecting organs. But the side affects sou d almost the same , but these bastards don't know because its not visible and we the only ones who feels what we do. Its complicated ! I know I lost my company and years of my life not being able to know why I've had so many problem with my nerves or muscles. They don't know and sent me to get brai. Scan. This is the Veteran Administration doctors saying to me how rare my condition is.

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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