I have had a deep brain stimulation since I was 18 years old
Uhm, what does this have to do with dystonia?…
some people with dystonia have these devices that use deep brain stimulation to counteract the signals that cause symptoms
DBS is a treatment for Parkinson's Disease once the meds stop being as effective. Dystonia is a common symptom with Young Onset Parkinson's Disease. So over time they have found out it helps dystonia symptoms as well. I have heard many good and bad stories about the procedure and outcome.
DBS takes the remaining brain cells that produces dopamine and stimulates them to produce more dopamine
DBS has a short term positive effect but shortens the life of the remaining dopamine producing brain cells. Not good
I was diagnosed in May 2013. I was 45 years old. I'm on the neupro patch, sinemet, symetrel, methocarbimol. It took years for the doctor to find the best meds for me. It's been tough. I have two intellectual
Impaired adult sons at home. One I provide 50% care for my 30 year old son.. I provide 80% care for my 26 year old. It's hard with parkinsons to be the caregiver. I still have breakthrough symptoms sometimes
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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