So idk how to word this question so bare with me. When I have bad pain days it's so much more than just pain, it's exhaustion and just overall not feeling good. But i can't explain the feeling of what doesn't feel good when my doctors and family ask, anyone else ever experience that?

Ehlers-Danlos Syndrome (EDS)

Generalized pain

Fibromyalgia (FM)

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  • Alic77


    Yes! I've spent a lifetime not being able to explain how I feel or why I feel the way I do.

  • Jogayge


    Yep, every single day. I have fibromyalgia and a general “feeling unwell” is a symptom, but I think EDS plays a big part too. I’sorry you’re having to battle that feeling, know you’re not alone and it’s v v real.

  • karagarza


    thank y'all ❤️❤️

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