PEMprincess

204d

How in the world does someone with multiple syndromes work or go to university? :(

Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)

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  • Belugabear

    204d

    I’m a university student and need to be part time. It’s taking me forever to finish my schooling but it’s not a race!

    • PEMprincess

      187d

      If you were a type A personality or perfectionist of any sort prior to having medical complications, grasping that our goals are not a race is one of the biggest (and arguably scariest, lol) things to fully accept. Still working on falling in love with the actual process/journey toward the goals I have & anchoring myself to the present moment. Thank you for this!

      • Belugabear

        187d

        yep I was a perfectionist too! It’s definitely been hard seeing all of my friends graduate, but I’m allowing myself to feel sad, especially since I know it will be worth getting my degree in the end! If you ever want to talk please message me!

  • MissLucy_101719

    201d

    Definitely take it at your own pace!

  • Lew_Bear

    200d

    I wonder the same thing every day. I’m just hoping they discover treatments that help enough to get back to my job

    • PEMprincess

      187d

      yes! I haven’t skipped a full year of work or schooling yet but each time I go the duration is shorter and shorter, and more taxing on my body. I do get defeated when I think about the way the world wasn’t designed for people like us despite there being such a large disabled community. I’m also grateful for so many lessons I’ve learned, so just maybe we will be the group that inspires the change 💝 Happy healing.

  • MatchaBunn

    200d

    I’m finding it hard to balance that, as well. Sometimes I can’t remember how I managed to work (at one point two jobs), do college courses, and have a social life. But I realized that I cannot work at that level without burning myself out. I try to make accommodations for myself in those spaces; I got my bachelor’s and master’s degrees online, I limit my shifts at work and take breaks when I need to, and I plan things in advance whenever possible.

    • PEMprincess

      187d

      Online school is great I’m going to look into that. I’ve also got a lot of anxiety centered around choosing a major/career because my body is so unreliable in “real world” work spaces. My last clock in job, I was able to reduce my work schedule to two days a week & my condition was unfortunately still too disruptive to maintain it. Can you relate/any tips for choosing healthy career path?

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