I have hereditary spherocytosis, its pretty mild (diagnosed at 16 or 17, but should have been at birth. my health improved before seeing a hemotologist). I never really understood how to handle this in terms of preventing an episode. Should I change my diet? Avoid blood thinners? When is this information relevant in a medical situation? is it a serious condition? I have so many questions, but nobody in my life has this and sometimes I get a doctor who doesn't know much about it. I've known about it for a few years, but its surprisingly hard to find info on.
I was born with the sickle cell trait, and recently have been feeling lightheaded 24/7. I went to the doctor and had to push to get blood work done only to find out I have microcytosis. Asked my dad and he said my aunt has beta-thalassemia. Does anyone else have experience with both? If so how does it effect your life?
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)