My Cancer Treatment Journey: From Diagnosis to Remission

Just to introduce myself. I was diagnosed in 2010, Trisomy 12 unmutated. I was in watch and wait until 2019. Started having significant infections with a steeply declining hemoglobin count. WBC was 287,000 and hemoglobin was below 9 when I entered a clinical trial in 2020 combining Bendamustine (Light 3 cycles to reduce tumor load), rituximab and venetoclax. After 2nd round of Bendamustine, I developed Steven Johnson Syndrome and was hospitalized for 6 days. Fortunately, it wasn't too severe and I recovered pretty quickly. After several months of treatment (rituximab and venetoclax), I became neutopenic, then developed pneumonia with another hospital stay. I am now out of treatment, achieved MRD negative on early 2022, and am currently still in remission. Feeling good, and very happy that there are now multiple treatment options. I now fully expect to live a long l, healthy and happy life. Thankful for all my friends, family and those that provided support during treatment.

Introduction and Update on CLL Treatment Journey

Ho just introduce myself I'm 57 Dx CLL 2015 , started treatment Ibrutinib in 2017 and still on it although my numbers are rising and heamotolgy are looking at a possible new drug depending on what btk mutation I have . I suspect it will be piro or similar. Last 16 months I have been getting nodular spots on my skin mainly face ,scalp chest and back and having biopsies done of which are not conclusive although they suspect it's to do with my CLL hopefully have more on this very soon