Worsening Pain After Sorafenib for Desmoid Tumor

Lemon_Poppy

786d

Hi everyone! Wow, I really wish I knew of this app when I was first diagnosed with my desmoid tumor and started sorafenib. Is anyone experiencing worsening pain in the area of their desmoid after the pain went down from sorafenib?

Neoplasm of connective and other soft tissue

Sorafenib

Generalized pain

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Darlington

726d

Also, there is a Facebook for this tumor, it has thousands of members and is very active and supportive ❤️

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Darlington

726d

My pain didn't really go down, but it has gotten worse. On Saturday, I had to call out of work because of the nerve pain. My last MRI there was no growth, which is the best results I've ever had, and my next MRI is on Thursday so idk if it's grown or not

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Worsening Pain After Sorafenib for Desmoid Tumor

Lemon_Poppy

Darlington

Darlington

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Worsening Pain After Sorafenib for Desmoid Tumor

Lemon_Poppy

Darlington

Darlington

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