Seeking Answers for Chronic Pain and Back Issues

So after 3 years of nothing I'm headed towards finding a new Neuro/pain management Dr. I found a rheumatologist finally. Have 5 referrals waiting 2b approved, including more PT. My primary sent me 2 an orthopedic surgeon, he was great. I mentioned EDS might b in the cards. He says he did NOT think so, that I don't fit the usual criteria. Said most EDS patients are long and lanky. Well I'm short and lanky, always have been. With the severity of my back and sciatica ECT I'm still super flexible. The arthritis head 2 toe still does not stop me from being able 2 do things most ppl can't and especially at my age 43. Still seeking answers and it's on my list, at least 2 mark it off. I still feel there's a reason I'm like this at an early age in life with no trama in my life at all. My back has went from moderate 2 severe stenosis in some places and mild 2 moderate in just a year of watching CTs. Ortho said he cud not help me much due 2 the severity of my back. He cud put some meds in my hip and see if it worked, if it did the pain is from my arthritis from the hip if not it's from my back. Well it's not working. So of course it's my back. Everything is from my back, Have gotten double sciatica down both legs now. I'm 2 my limit with pain, I got off all the meds they had me on loritab and Adderall. Just didn't help and makes a girl moody . Finally got the Lyrica and on Duloxetine. Lyrica helps a bit, just started. I have so many Drs, I'm not sure if I'm just hoping for miracles in a fantasy land or if all this is actually worth it..... primary care neurologist/pain management neurosurgeon allergist Obgyn physical therapy orthopedic surgeon dermatologist rheumatologist Gastroenterologist Opthalmologist Urologist And everything is all connected, all the Drs are needed cuz of my back and symptoms. I have random rashes and found out I had narrow end glaucoma and dry eye bad so maybe not that so much. Has ANYONE gotten ANYWHERE w all these Drs? I'm wanting 2 give up so badly. Been trying since I was in my mid 20s and stopped cuz they didn't listen 2 me, now it's 2 severe 2 do anything for it I'm being told. Hypermobile bladder that's overactive. Wish I cud go back 2 all those Drs I saw in my 20s that told me I was 2 young for back problems and shove it in their face and make them give up some funds for my care. I think it's only fair that they do that. I was ready then 2 take care of it, now they're finally ready and there's nothing 2 do? Not even surgery? Anyone feel like I do? Feel let down, like everything is a dead end? That ur smarter than the Drs cuz they don't seem 2 do much until u tell them 2 do something.? I don't want 2b in a wheelchair in 5 years and that's where I'm headed. Already walk w a cane. I have a life 2 lead!! My brain is not cripple, it wants 2 go. Anyone know about the rheumatologists and neurosurgeons in the Orlando, FL area? I'm in S Daytona but that's where most the speciality Drs are. So far I have 2 from UF Health. My insurance covers anything UF. Any suggestions or Drs w good bedside manner and knowledgeable? Lmk.