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Samsampuppylove

762d

I’m having trouble finding a doctor around me that knows how to take care of eds patience when I tried to converse with them it seems like they don’t understand or they don’t believe me I have been diagnosed but I’m having trouble finding a primary care doctor to help me with it I am on no medication for this syndrome currently and the only thing that they have done so far was my orthopedic has put my knees and my shoulder in braces that’s all they have done

Top reply
    • lavap

      756d

      it’s really hard to find good physicians that believe and know about eds or even are just willing to learn and research it. Luckily, my doctor has eds, and knows exactly what i’m going through.

    • lavap

      756d

      it’s really hard to find good physicians that believe and know about eds or even are just willing to learn and research it. Luckily, my doctor has eds, and knows exactly what i’m going through.

    • roulette164

      756d

      depending on where u live and how old u r, it can definitely be hard. i just moved to a new area (Augusta, GA area) and got EXTREMELY lucky that i was still 17 when we moved, so i could see a pediatrician. AU University in Augusta has been overall pretty amazing. i hope u find someone who will help u and take ur concerns seriously. one thing i will do tho if they won’t take u seriously, is ask them to note if they refuse to do scans and such in ur chart, so it’ll reflect badly on them.

    • coolseannie

      759d

      Same here, I had to go for some nerve pain in my hands and feet that allowed me to get a rheumatologist appointment. I am going to be getting tested for Eds soon!

    • BeaniePerez

      760d

      unfortunately I’d seek out a rheumatologist or an ehlers specialist :( i have yet to meet a primary care doc that takes it seriously or even knows what it is, sadly.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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