Stories
Privacy
Download
See Alike in...
Alike App
Browser
733d
I’m having trouble finding a doctor around me that knows how to take care of eds patience when I tried to converse with them it seems like they don’t understand or they don’t believe me I have been diagnosed but I’m having trouble finding a primary care doctor to help me with it I am on no medication for this syndrome currently and the only thing that they have done so far was my orthopedic has put my knees and my shoulder in braces that’s all they have done
2
4
Share
Ehlers-Danlos Syndrome (EDS)
advertisement
727d
it’s really hard to find good physicians that believe and know about eds or even are just willing to learn and research it. Luckily, my doctor has eds, and knows exactly what i’m going through.
0
depending on where u live and how old u r, it can definitely be hard. i just moved to a new area (Augusta, GA area) and got EXTREMELY lucky that i was still 17 when we moved, so i could see a pediatrician. AU University in Augusta has been overall pretty amazing. i hope u find someone who will help u and take ur concerns seriously. one thing i will do tho if they won’t take u seriously, is ask them to note if they refuse to do scans and such in ur chart, so it’ll reflect badly on them.
731d
Same here, I had to go for some nerve pain in my hands and feet that allowed me to get a rheumatologist appointment. I am going to be getting tested for Eds soon!
732d
unfortunately I’d seek out a rheumatologist or an ehlers specialist :( i have yet to meet a primary care doc that takes it seriously or even knows what it is, sadly.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions