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Jessamy

83d

what would you tell someone who is possibly about to be diagnosed with this and really scared?

    • LisiPoo

      4d

      It's anew life style to figure out, but once you figure out the meaning of the letters being thrown around. Look it up.... The most ironic part that happened is... Hughes is my maiden name and another name for the syndrome. Good wishes for your friend!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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"I would say the first step is to do research and learn about it as much as you can in order to understand the diagnosis and all that comes with it. It’s easier to control and you feel more in power. Feel free to message me, IC can be challenging but it helps to talk to people who genuinely understand and can help in ways that others who aren’t experiencing it."

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