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Hey there! Wondering if anyone had a similar experience. I was “diagnosed” with EDS at 11yo, but the doctors said they weren’t technically allowed to diagnose me or put it in my chart. I am now 19, and wondering what it would take these days to get re-diagnosed. Any thoughts? :’0
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Edema & Anasarca
Ehlers-Danlos Syndrome (EDS)
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I'm the same way, so following
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Generally a blood test from a rheumatologist, I think, and if that doesn't work a stretch test from a rheumatologist.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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