Dealing with Joint Pain: Seeking Advice and Support

we can go thru this together !!

no way I'm going thru the same thing

You must live near me lol. There's one guy within 100 miles of me and he primarily takes pediatrics. I've been on the wait-list for, no joke, more than three years. I've had the same experience with joint pain too, although mine started when I was around 5 years old, just like my mother. I have the general EDS dx, but an appointment with a geneticist is not in the cards right now. My GP is incredibly grateful that I've done hours and hours and hours of research and she won't question my diagnosis, but she's working with me to figure out how she can beat approach EDS patients and which specialists to send them to. Ask your GP for a referral to orthopedics and to rheumatology, those are the people who are gonna be able to treat your symptoms and maybe give you an unspecified EDS dx for insurance purposes. I'm always up for talking about my experiences and answering questions if you want to DM me about it!