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Savadoo

851d

How old were you when comorbid conditions onset? (ex: POTS, mast cell, etc) And how long was that after EDS symptoms appeared? Wondering what I might be in for.

Top reply
    • Kelsi

      843d

      I had signs and symptoms of everything from the time I was a baby, but my symptoms became more severe around the onset of puberty. Still, I was active and just thought the moderate pain I was in was normal. Around the age of 19, things got worse, and then at 25ish everything started to rapidly progress. 28 was the year that my body finally told me I couldn’t do most of what I loved anymore, and since then it’s all been a constant battle to remain independent and out of the hospital.

    • Kelsi

      843d

      I had signs and symptoms of everything from the time I was a baby, but my symptoms became more severe around the onset of puberty. Still, I was active and just thought the moderate pain I was in was normal. Around the age of 19, things got worse, and then at 25ish everything started to rapidly progress. 28 was the year that my body finally told me I couldn’t do most of what I loved anymore, and since then it’s all been a constant battle to remain independent and out of the hospital.

    • VixenBelladonna

      843d

      Everything got considerably worse abs more noticeable around 27, it’s Been like two years and I’ve been applying for disability since then. I have pinched nerves and nothing has seemed to be able to give me and pain relief for them yet. On top of the arthritis getting to the point where I have constant left side nerve pain down my arm and leg, my dysautonomia started around then, and increase in fatigue, plus brand new allergies like gluten and shellfish, maybe more even because I’m still getting rashes. I’m at the point I’m planning on seeing if I can get a reclining motorized wheelchair so I can actually have outings that don’t raise my pain levels enough I need multiple recovery days from. But i had enough injuries from doing next to nothing In my highschool age and before that most of it was probably pretty obvious back then too, I was very hypermobile, my ankles often gave out for no reason, had a stress fracture in my foot just from walking too much, my knees would buckle under me after long car rides when we finally got out of the car and I’d often almost fall when it happened. My mother even asked the doctor about it once but I said not really when he asked if it hurt so he said not to worry about it if it didn’t hurt and that was it. Really me saying not really instead of no should have been a clue but I I had pain in the past they decided was growing pains so I had a base pain level higher than 0 regularly and just thought that was normal, it wasn’t constant like now, but it was frequent.

    • Sickem

      850d

      I have so many of the same all these ppl do^^^ I wanna talk one on one for better help 😅😅

    • Danika

      850d

      Hypermobility symptoms have been around for as long as I can remember, but the noticeable pain started around 20 for me. GI symptoms started worsening around 25ish… and I was diagnosed with POTS around 32 when I moved to a higher elevation.

    • Tigbraids

      850d

      I've always had hypermobility. When I was 12 and hit puberty the POTS kicked in as well as vision problems and extremely low O2 levels. Hormones definitely contribute to a lot of people EDS triggering.

    • gerky03

      850d

      my POTS worsened around 14/15 but my EDS symptoms have been around forever. still remember dance class when i was around 4 years old— got in trouble because i wasn’t “working hard enough” when my back and hips limited my movement 🤗

    • MangoPeach

      850d

      Around 19

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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