Living with POTS Syndrome: How Has It Affected Your Life?

always tired need breaks a lot and I sweat so much worse than others. Can only exercise for 15 minutes a day.

I think mine is because of my EDS. That was my POTS doctor’s conclusion as well. My POTS symptoms started at about the same age as my EDS issues really became apparent (13 or so).

My grandfather as well as my mom and all of her siblings have a type of dysautomia. It was assumed that I would get it too, but I started showing major symptoms a lot later than they did. Getting up hours earlier than needed to prepare is one of my biggest struggles, I hate that I need a few hours to bring the dizziness and nausea down to be able to function in my daily life.

so, for a while i thought that when i got extreme sun poisoning back in 2018 that’s how i got it. but i was recently diagnosed with EDS and i found out that EDS causes POTS sooo who knows!!!

I think I got it from having so many surgeries (I was an athlete). I think the trauma of all of the repairs was just too much for my body.

Mine was genetic. I ended up having to begin homeschooling because I couldn’t bring myself to walk around in public anymore. Have spent most of my days at home since.