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sleepyuwu

773d

I watch a series where a neurodivergent/schizoeffective person proposed the terms presenting well/not presenting well vs high/low functioning for nd people. I like that it doesn't give the implication of low/high intelligence. I've been using presenting well/not presenting well with people/drs/therapists and they seem to like it instead of the other when I bring it up. Anyone like these? Anyone like the other labels?

Top reply
    • SAMHAIN

      756d

      @Snowy Yo โž•1๏ธโƒฃ on the "I am unable to hold back the cynicism I feel toward this and thusly: ๐‘ฎ๐’๐’‚๐’… ๐’Ž๐’š '๐’‘๐’“๐’†๐’”๐’†๐’๐’•๐’‚๐’•๐’Š๐’๐’' ๐’Š๐’” ๐’„๐’๐’Ž๐’Š๐’๐’ˆ ๐’•๐’‰๐’“๐’๐’–๐’ˆ๐’‰." sentiment. Especially considering my CAT-Q. Triggered ๐Ÿคฃ (AQ : 46/50) (SQ: 144/150) (Aspie 176ND/49NT=ฮ”127โ†‘) (RBQ-2A: 58/60) (RAADS-R: 183/240) (EQ: 22/80) (CATQ: 155/175) If I were Dx'd a few years ago, I would have been tagged "HFA/Aspergerโ€™s Syndrome" for sure. I strongly relate to and both emoathise & sympathise with anyone whose sentiment comes through post-dx as "I don't feel right claiming it/utilising assistance & accommodations sometimes because I don't feel ๐˜ข๐˜ถ๐˜ต๐˜ช๐˜ด๐˜ต๐˜ช๐˜ค ๐™š๐™ฃ๐™ค๐™ช๐™œ๐™." I've been told all my life I have no excuse for my shortcomings, struggles, and differences, and have literally been told to "pull up my bootstraps"/"sack up" and get going with everyone else. Part of the diagnostic criteria for Autism is literally being told you're wrong, and essentially having all of your differential experiences gaslit. That's why we basically all come with PTSD as well: we all exist in a neurotypical world. And I feel this holds a direct relationship with the social perception, stigmas, acceptance, and development or evolution of the status quo which surrounds them in their locale. Folks in blue areas, seemingly, tend to be more accepting of themselves, open about their conditions, and relaxed about how an individual chooses to describe themselvesโ€”while almost the polar opposite holds true in red areas and for the afflicted within them. I think there's a lot to take away from this observation. ADHDers are said to receive 20,000 *more* negative messages than positive ones by ๐—ฎ๐—ด๐—ฒ ๐Ÿญ๐Ÿฌ. And a stricter environment and upbringing are known to exacerbate neurodivergent traits, further feeding into this negative feedback loop. It's no wonder the red states generally create people with such terrible self-esteem and inability to accept themselves. AKA: "large Egos" Real-life example of this: I attended my first appointment for my ASD dx eval ๐Ÿณ ๐——๐—”๐—ฌ๐—ฆ after my first phone call to the clinic to request it. This is literally unheard of in any other autist's experience as far as I have discussed or borne witness in my extensive *special interest hyperfocused rabbitholing.* The usual wait time seems to be 1-3 years. Where do I live? Nebraska. Where the complete lack of care or attention to one's mental health in the general population has worked to my advantage for the first and probably last time I'll ever experience.๐Ÿ˜†๐Ÿ˜ฎโ€๐Ÿ’จ

    • SAMHAIN

      756d

      Despite your recent uncalled-for DM, I'm still going to add $2 here bc you literally asked for feedback here, then came and asked for my focus of attention by Directly Messaging me.. ๐Ÿ˜˜ "๐™ต๐šž๐š—๐šŒ๐š๐š’๐š˜๐š—๐šŠ๐š•๐š•๐šข." Just generalise it. ๐Ÿ‘ Don't give it a qualifier, that's what feels rude. It implies, directly, physical ability ("functionality")โ€”without giving it a connotative context. E.g.: If you want to reference an aspect of Down, you can say "functionally neurodivergent" as you're likely referencing their actual ability to function ๐’Š๐’ ๐’‚ ๐’๐’†๐’–๐’“๐’๐’•๐’š๐’‘๐’Š๐’„๐’‚๐’ ๐’˜๐’‚๐’š ๐˜„๐—ถ๐˜๐—ต๐—ถ๐—ป ๐˜๐—ต๐—ฒ๐—ถ๐—ฟ *๐™—๐™ค๐™™๐™ฎ* (not their *๐˜ฎ๐˜ช๐˜ฏ๐˜ฅ*) by use of their given neural biology. "The neurotypical way" is, was, and long will be the de-facto "standard" assumed by the status quo. So, this works. imho. If you're referencing their mental capability or fortitude, we already have a term for thisโ€”"mentally disabled." Which you would use if you were referring to that aspect of neurological function/neurodivergence. So, no need to split hairs there. Or, nerve endings, I suppose. ๐Ÿ™ƒ

      • SAMHAIN

        756d

        @SAMHAIN The fact of the matter is, human beings as primates with the brains we have operate based on comparison of ourselves against our surrounding environment, and by comparison of the objects we interact with in comparison to our experiences with similar objects and experiences. This is where the concept of "I/self" versus "the other" derives, and this happens despite any social context or educational material to every child. For all children who speak, it is evidenced upon their first use of the first person, which denotes understanding of duality. (๐‘จ๐’๐’”๐’, ๐’Š๐’๐’•๐’†๐’“๐’†๐’”๐’•๐’Š๐’๐’ˆ๐’๐’š ๐’†๐’๐’๐’–๐’ˆ๐’‰, ๐’•๐’‰๐’Š๐’” ๐’Š๐’” ๐’˜๐’‰๐’†๐’“๐’† ๐’”๐’๐’Ž๐’† ๐’๐’‡ ๐’•๐’‰๐’† ๐’”๐’๐’„๐’Š๐’‚๐’ ๐’‘๐’“๐’๐’ƒ๐’๐’†๐’Ž๐’” ๐’‡๐’๐’“ ๐’‚๐’–๐’•๐’Š๐’”๐’•๐’” ๐’‚๐’“๐’Š๐’”๐’† ๐’ƒ๐’†๐’„๐’‚๐’–๐’”๐’† ๐’‰๐’–๐’Ž๐’‚๐’๐’” ๐’‚๐’”๐’”๐’–๐’Ž๐’† ๐’๐’•๐’‰๐’†๐’“ ๐’‰๐’–๐’Ž๐’‚๐’๐’” ๐’•๐’ ๐’‰๐’‚๐’—๐’† ๐’•๐’‰๐’† ๐’”๐’‚๐’Ž๐’†/๐’”๐’Š๐’Ž๐’Š๐’๐’‚๐’“ ๐’†๐’™๐’‘๐’†๐’“๐’Š๐’†๐’๐’„๐’† ๐’‚๐’” ๐’•๐’‰๐’†๐’š ๐’…๐’โ€”๐’ƒ๐’–๐’• ๐’Ž๐’๐’”๐’• ๐’…๐’๐’'๐’• [๐’‰๐’‚๐’—๐’† ๐’๐’–๐’“ ๐’†๐’™๐’‘๐’†๐’“๐’Š๐’†๐’๐’„๐’†]. ๐‘ฏ๐’†๐’๐’„๐’†๐’‡๐’๐’“๐’•๐’‰: ๐’”๐’๐’„๐’Š๐’‚๐’ ๐’„๐’๐’๐’‡๐’–๐’”๐’Š๐’๐’ ๐’‚๐’๐’… ๐’Ž๐’Š๐’”๐’–๐’๐’…๐’†๐’“๐’”๐’•๐’‚๐’๐’…๐’Š๐’๐’ˆ ๐’๐’‡ ๐’Š๐’Ž๐’‘๐’๐’Š๐’†๐’… ๐’ƒ๐’๐’–๐’๐’…๐’‚๐’“๐’Š๐’†๐’” ๐’‚๐’๐’… ๐’†๐’™๐’‘๐’†๐’„๐’•๐’‚๐’๐’„๐’Š๐’†๐’” ๐’ƒ๐’†๐’„๐’‚๐’–๐’”๐’† ๐’˜๐’† ๐’‹๐’–๐’”๐’• ๐’…๐’๐’'๐’• ๐’–๐’๐’…๐’†๐’“๐’”๐’•๐’‚๐’๐’… ๐’˜๐’‰๐’‚๐’• ๐’๐’•๐’‰๐’†๐’“ ๐’‰๐’–๐’Ž๐’‚๐’๐’” ๐’”๐’†๐’†๐’Ž ๐’•๐’ ๐’‚๐’๐’“๐’†๐’‚๐’…๐’š ๐’Š๐’๐’‰๐’†๐’“๐’†๐’๐’•๐’๐’š ๐’Œ๐’๐’๐’˜.) Humanity getting to an emotional point where they cannot handle the entire concept or substantiation of โ˜…comparison itselfโ˜… without hurting their Ego (read: "feelings which protect their insecurities") is the problem in and of itself, not the comparison being made. Clinically applying terms which *may* cause *an* individual to feel bad about themselves can be debated as whether or not it's relatively still beneficial when used in large numbers across many populations, but it's going to be pretty hard to debate that we will ever find a term which makes 100% of people on all points of the neurodivergent spectrum and the Ally gradient happy. Subjective experience will always be just thatโ€”subjective. Just look at xenogenders. ๐Ÿ’• I like what you've doneโ€”to just take a phrasing you enjoy or find affiliation with, and use it for yourself and in your own speech. I find this far more executable than finding a label that works for everyone. Relative side note, here: "High/Low Functioning Autistic" was done-away with, along with the other old titles ๐˜ข๐˜ฏ๐˜ฅ ๐˜ต๐˜ฉ๐˜ฆ๐˜ช๐˜ณ ๐˜ฅ๐˜ฆ๐˜ง๐˜ช๐˜ฏ๐˜ช๐˜ต๐˜ช๐˜ฐ๐˜ฏ๐˜ด, in the creation of the term "Spectrum Disorder" for the DSM-V. And that was its ๐’†๐’๐’•๐’Š๐’“๐’† ๐’‘๐’–๐’“๐’‘๐’๐’”๐’†โ€”to functionally erase those terms from both clinical and social use. This was following a case study which brought a number of autists and allistics into evaluation by a number of (notably: all-allistic) clinicians and resulted in ๐™ฃ๐™ค ๐™ฉ๐™ฌ๐™ค ๐™–๐™ช๐™ฉ๐™ž๐™จ๐™ฉ๐™จ ๐™ง๐™š๐™˜๐™š๐™ž๐™ซ๐™ž๐™ฃ๐™œ ๐™ฉ๐™๐™š ๐™จ๐™–๐™ข๐™š ๐™™๐™ž๐™–๐™œ๐™ฃ๐™ค๐™จ๐™ž๐™จ ๐™—๐™ฎ ๐™ฉ๐™ฌ๐™ค ๐™จ๐™š๐™ฅ๐™–๐™ง๐™–๐™ฉ๐™š ๐™˜๐™ก๐™ž๐™ฃ๐™ž๐™˜๐™ž๐™–๐™ฃ๐™จ. This very clearly displayed a lack of understanding of the actual condition under question, as well as implied mis-diagnosis of countless individuals in ways which the results cannot be realistically quantified. The entire field made quick amends with the introduction of the Neurodivergent Spectrum and the release of the Fifth Edition, as a first step toward taking a new diagnostic approach to this varied affliction. "๐—œ๐—ณ ๐˜†๐—ผ๐˜‚'๐˜ƒ๐—ฒ ๐—บ๐—ฒ๐˜ ๐—ผ๐—ป๐—ฒ ๐—ฎ๐˜‚๐˜๐—ถ๐˜€๐˜, ๐˜†๐—ผ๐˜‚โ€™๐˜ƒ๐—ฒ ๐—บ๐—ฒ๐˜ ๐—ผ๐—ป๐—ฒ ๐—ฎ๐˜‚๐˜๐—ถ๐˜€๐˜" was officially, clinically, recognised. Any clinician still using HFA/LFA labels is blatantly letting on that they aren't keeping up with current research, as well as blatantly harming their patients by giving them literal labels which imply to others their level of abilities across some sort of implied gradient. You shouldn't worry too much about the use of these termsโ€”it's the same thing as saying someone has "moral failing, clumsy child syndrome, minimal brain dysfunction," or calling someone "morally corrupt, ret*rded," or any of the other long collection of descriptors used to describe us since the 1700s. Notice which of those is most recent, and the fact it's the only one I had to censor because it's ๐’•๐’๐’ ๐’”๐’๐’๐’ since everyone who's personally been described with and affected by it isn't dead, and there's still a large "hiss hiss" regarding its use, even in historical reference, to avoid hurting those feelings. That's where HFA/LFA is now. Give it a timeline, and it'll fade into obscurity. โ™ก

    • sleepyuwu

      773d

      It's called living well with schizophrenia. YouTube ๐Ÿค—

    • blackberryjoy

      773d

      whatโ€™s the series called? sounds interesting

    • sleepyuwu

      773d

      I'm kinda on the fence about it myself and those other suggestions were pretty sick I will use those as well and see which ones i like more!! I think i like the first ones- I might be misinterpreting it too, because i think it's more referring to how you are mentally and not how you come off to people. Times where I know what to say and feel confident and im not masking even if Im stimming a lot ill say I'm presenting well. If I'm symptomatic I say I'm not presenting well even if I look okay. But idk! Maybe I'm using it wrong xD

    • Katty

      773d

      I know a lot of people use need base labels instead (high, medium, or low support needs) based on the personโ€™s dependence on others.

    • Snowy

      773d

      Certainly is interesting. I've never particularly liked high/low functioning, but haven't really known what to use instead. Idk if I really like that either, but maybe it's better than high/low? I think my issue with "presenting well" (which would be my label as "very high functioning" is currently) makes me think of masking. Like "I am PRESENTING myself well... thanks, I mask so I seem ok. Glad my 'presentation' is coming through." I guess it feels a little invalidating to me. But I also don't suffer from the high/low vocabulary. I'll be interested to hear others' thoughts

      • SAMHAIN

        756d

        @Snowy Yo โž•1๏ธโƒฃ on the "I am unable to hold back the cynicism I feel toward this and thusly: ๐‘ฎ๐’๐’‚๐’… ๐’Ž๐’š '๐’‘๐’“๐’†๐’”๐’†๐’๐’•๐’‚๐’•๐’Š๐’๐’' ๐’Š๐’” ๐’„๐’๐’Ž๐’Š๐’๐’ˆ ๐’•๐’‰๐’“๐’๐’–๐’ˆ๐’‰." sentiment. Especially considering my CAT-Q. Triggered ๐Ÿคฃ (AQ : 46/50) (SQ: 144/150) (Aspie 176ND/49NT=ฮ”127โ†‘) (RBQ-2A: 58/60) (RAADS-R: 183/240) (EQ: 22/80) (CATQ: 155/175) If I were Dx'd a few years ago, I would have been tagged "HFA/Aspergerโ€™s Syndrome" for sure. I strongly relate to and both emoathise & sympathise with anyone whose sentiment comes through post-dx as "I don't feel right claiming it/utilising assistance & accommodations sometimes because I don't feel ๐˜ข๐˜ถ๐˜ต๐˜ช๐˜ด๐˜ต๐˜ช๐˜ค ๐™š๐™ฃ๐™ค๐™ช๐™œ๐™." I've been told all my life I have no excuse for my shortcomings, struggles, and differences, and have literally been told to "pull up my bootstraps"/"sack up" and get going with everyone else. Part of the diagnostic criteria for Autism is literally being told you're wrong, and essentially having all of your differential experiences gaslit. That's why we basically all come with PTSD as well: we all exist in a neurotypical world. And I feel this holds a direct relationship with the social perception, stigmas, acceptance, and development or evolution of the status quo which surrounds them in their locale. Folks in blue areas, seemingly, tend to be more accepting of themselves, open about their conditions, and relaxed about how an individual chooses to describe themselvesโ€”while almost the polar opposite holds true in red areas and for the afflicted within them. I think there's a lot to take away from this observation. ADHDers are said to receive 20,000 *more* negative messages than positive ones by ๐—ฎ๐—ด๐—ฒ ๐Ÿญ๐Ÿฌ. And a stricter environment and upbringing are known to exacerbate neurodivergent traits, further feeding into this negative feedback loop. It's no wonder the red states generally create people with such terrible self-esteem and inability to accept themselves. AKA: "large Egos" Real-life example of this: I attended my first appointment for my ASD dx eval ๐Ÿณ ๐——๐—”๐—ฌ๐—ฆ after my first phone call to the clinic to request it. This is literally unheard of in any other autist's experience as far as I have discussed or borne witness in my extensive *special interest hyperfocused rabbitholing.* The usual wait time seems to be 1-3 years. Where do I live? Nebraska. Where the complete lack of care or attention to one's mental health in the general population has worked to my advantage for the first and probably last time I'll ever experience.๐Ÿ˜†๐Ÿ˜ฎโ€๐Ÿ’จ

โ˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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