Stories
Privacy
Download
See Alike in...
Alike App
Browser
773d
I watch a series where a neurodivergent/schizoeffective person proposed the terms presenting well/not presenting well vs high/low functioning for nd people. I like that it doesn't give the implication of low/high intelligence. I've been using presenting well/not presenting well with people/drs/therapists and they seem to like it instead of the other when I bring it up. Anyone like these? Anyone like the other labels?
4
8
Share
Autism Spectrum Disorder (ASD)
advertisement
756d
@Snowy Yo โ1๏ธโฃ on the "I am unable to hold back the cynicism I feel toward this and thusly: ๐ฎ๐๐๐ ๐๐ '๐๐๐๐๐๐๐๐๐๐๐๐' ๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐๐๐." sentiment. Especially considering my CAT-Q. Triggered ๐คฃ (AQ : 46/50) (SQ: 144/150) (Aspie 176ND/49NT=ฮ127โ) (RBQ-2A: 58/60) (RAADS-R: 183/240) (EQ: 22/80) (CATQ: 155/175) If I were Dx'd a few years ago, I would have been tagged "HFA/Aspergerโs Syndrome" for sure. I strongly relate to and both emoathise & sympathise with anyone whose sentiment comes through post-dx as "I don't feel right claiming it/utilising assistance & accommodations sometimes because I don't feel ๐ข๐ถ๐ต๐ช๐ด๐ต๐ช๐ค ๐๐ฃ๐ค๐ช๐๐." I've been told all my life I have no excuse for my shortcomings, struggles, and differences, and have literally been told to "pull up my bootstraps"/"sack up" and get going with everyone else. Part of the diagnostic criteria for Autism is literally being told you're wrong, and essentially having all of your differential experiences gaslit. That's why we basically all come with PTSD as well: we all exist in a neurotypical world. And I feel this holds a direct relationship with the social perception, stigmas, acceptance, and development or evolution of the status quo which surrounds them in their locale. Folks in blue areas, seemingly, tend to be more accepting of themselves, open about their conditions, and relaxed about how an individual chooses to describe themselvesโwhile almost the polar opposite holds true in red areas and for the afflicted within them. I think there's a lot to take away from this observation. ADHDers are said to receive 20,000 *more* negative messages than positive ones by ๐ฎ๐ด๐ฒ ๐ญ๐ฌ. And a stricter environment and upbringing are known to exacerbate neurodivergent traits, further feeding into this negative feedback loop. It's no wonder the red states generally create people with such terrible self-esteem and inability to accept themselves. AKA: "large Egos" Real-life example of this: I attended my first appointment for my ASD dx eval ๐ณ ๐๐๐ฌ๐ฆ after my first phone call to the clinic to request it. This is literally unheard of in any other autist's experience as far as I have discussed or borne witness in my extensive *special interest hyperfocused rabbitholing.* The usual wait time seems to be 1-3 years. Where do I live? Nebraska. Where the complete lack of care or attention to one's mental health in the general population has worked to my advantage for the first and probably last time I'll ever experience.๐๐ฎโ๐จ
0
Despite your recent uncalled-for DM, I'm still going to add $2 here bc you literally asked for feedback here, then came and asked for my focus of attention by Directly Messaging me.. ๐ "๐ต๐๐๐๐๐๐๐๐๐๐๐ข." Just generalise it. ๐ Don't give it a qualifier, that's what feels rude. It implies, directly, physical ability ("functionality")โwithout giving it a connotative context. E.g.: If you want to reference an aspect of Down, you can say "functionally neurodivergent" as you're likely referencing their actual ability to function ๐๐ ๐ ๐๐๐๐๐๐๐๐๐๐๐๐ ๐๐๐ ๐๐ถ๐๐ต๐ถ๐ป ๐๐ต๐ฒ๐ถ๐ฟ *๐๐ค๐๐ฎ* (not their *๐ฎ๐ช๐ฏ๐ฅ*) by use of their given neural biology. "The neurotypical way" is, was, and long will be the de-facto "standard" assumed by the status quo. So, this works. imho. If you're referencing their mental capability or fortitude, we already have a term for thisโ"mentally disabled." Which you would use if you were referring to that aspect of neurological function/neurodivergence. So, no need to split hairs there. Or, nerve endings, I suppose. ๐
@SAMHAIN The fact of the matter is, human beings as primates with the brains we have operate based on comparison of ourselves against our surrounding environment, and by comparison of the objects we interact with in comparison to our experiences with similar objects and experiences. This is where the concept of "I/self" versus "the other" derives, and this happens despite any social context or educational material to every child. For all children who speak, it is evidenced upon their first use of the first person, which denotes understanding of duality. (๐จ๐๐๐, ๐๐๐๐๐๐๐๐๐๐๐๐๐ ๐๐๐๐๐๐, ๐๐๐๐ ๐๐ ๐๐๐๐๐ ๐๐๐๐ ๐๐ ๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐๐๐๐ ๐๐๐ ๐๐๐๐๐๐๐ ๐๐๐๐๐ ๐๐๐๐๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐ ๐๐๐๐๐๐ ๐๐ ๐๐๐๐ ๐๐๐ ๐๐๐๐/๐๐๐๐๐๐๐ ๐๐๐๐๐๐๐๐๐๐ ๐๐ ๐๐๐๐ ๐ ๐โ๐๐๐ ๐๐๐๐ ๐ ๐๐'๐ [๐๐๐๐ ๐๐๐ ๐๐๐๐๐๐๐๐๐๐]. ๐ฏ๐๐๐๐๐๐๐๐๐: ๐๐๐๐๐๐ ๐๐๐๐๐๐๐๐๐ ๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐๐๐๐ ๐๐๐ ๐๐ ๐๐๐๐๐๐๐ ๐๐๐๐๐ ๐๐๐๐๐ ๐๐๐ ๐๐๐๐๐๐๐๐๐๐๐๐ ๐๐๐๐๐๐๐ ๐๐ ๐๐๐๐ ๐ ๐๐'๐ ๐๐๐ ๐๐๐๐๐๐๐ ๐๐๐๐ ๐๐๐๐๐ ๐๐๐๐๐๐ ๐๐๐๐ ๐๐ ๐๐๐๐๐๐ ๐ ๐๐๐๐๐๐๐๐๐๐ ๐๐๐๐.) Humanity getting to an emotional point where they cannot handle the entire concept or substantiation of โ comparison itselfโ without hurting their Ego (read: "feelings which protect their insecurities") is the problem in and of itself, not the comparison being made. Clinically applying terms which *may* cause *an* individual to feel bad about themselves can be debated as whether or not it's relatively still beneficial when used in large numbers across many populations, but it's going to be pretty hard to debate that we will ever find a term which makes 100% of people on all points of the neurodivergent spectrum and the Ally gradient happy. Subjective experience will always be just thatโsubjective. Just look at xenogenders. ๐ I like what you've doneโto just take a phrasing you enjoy or find affiliation with, and use it for yourself and in your own speech. I find this far more executable than finding a label that works for everyone. Relative side note, here: "High/Low Functioning Autistic" was done-away with, along with the other old titles ๐ข๐ฏ๐ฅ ๐ต๐ฉ๐ฆ๐ช๐ณ ๐ฅ๐ฆ๐ง๐ช๐ฏ๐ช๐ต๐ช๐ฐ๐ฏ๐ด, in the creation of the term "Spectrum Disorder" for the DSM-V. And that was its ๐๐๐๐๐๐ ๐๐๐๐๐๐๐โto functionally erase those terms from both clinical and social use. This was following a case study which brought a number of autists and allistics into evaluation by a number of (notably: all-allistic) clinicians and resulted in ๐ฃ๐ค ๐ฉ๐ฌ๐ค ๐๐ช๐ฉ๐๐จ๐ฉ๐จ ๐ง๐๐๐๐๐ซ๐๐ฃ๐ ๐ฉ๐๐ ๐จ๐๐ข๐ ๐๐๐๐๐ฃ๐ค๐จ๐๐จ ๐๐ฎ ๐ฉ๐ฌ๐ค ๐จ๐๐ฅ๐๐ง๐๐ฉ๐ ๐๐ก๐๐ฃ๐๐๐๐๐ฃ๐จ. This very clearly displayed a lack of understanding of the actual condition under question, as well as implied mis-diagnosis of countless individuals in ways which the results cannot be realistically quantified. The entire field made quick amends with the introduction of the Neurodivergent Spectrum and the release of the Fifth Edition, as a first step toward taking a new diagnostic approach to this varied affliction. "๐๐ณ ๐๐ผ๐'๐๐ฒ ๐บ๐ฒ๐ ๐ผ๐ป๐ฒ ๐ฎ๐๐๐ถ๐๐, ๐๐ผ๐โ๐๐ฒ ๐บ๐ฒ๐ ๐ผ๐ป๐ฒ ๐ฎ๐๐๐ถ๐๐" was officially, clinically, recognised. Any clinician still using HFA/LFA labels is blatantly letting on that they aren't keeping up with current research, as well as blatantly harming their patients by giving them literal labels which imply to others their level of abilities across some sort of implied gradient. You shouldn't worry too much about the use of these termsโit's the same thing as saying someone has "moral failing, clumsy child syndrome, minimal brain dysfunction," or calling someone "morally corrupt, ret*rded," or any of the other long collection of descriptors used to describe us since the 1700s. Notice which of those is most recent, and the fact it's the only one I had to censor because it's ๐๐๐ ๐๐๐๐ since everyone who's personally been described with and affected by it isn't dead, and there's still a large "hiss hiss" regarding its use, even in historical reference, to avoid hurting those feelings. That's where HFA/LFA is now. Give it a timeline, and it'll fade into obscurity. โก
It's called living well with schizophrenia. YouTube ๐ค
2
whatโs the series called? sounds interesting
I'm kinda on the fence about it myself and those other suggestions were pretty sick I will use those as well and see which ones i like more!! I think i like the first ones- I might be misinterpreting it too, because i think it's more referring to how you are mentally and not how you come off to people. Times where I know what to say and feel confident and im not masking even if Im stimming a lot ill say I'm presenting well. If I'm symptomatic I say I'm not presenting well even if I look okay. But idk! Maybe I'm using it wrong xD
1
I know a lot of people use need base labels instead (high, medium, or low support needs) based on the personโs dependence on others.
Certainly is interesting. I've never particularly liked high/low functioning, but haven't really known what to use instead. Idk if I really like that either, but maybe it's better than high/low? I think my issue with "presenting well" (which would be my label as "very high functioning" is currently) makes me think of masking. Like "I am PRESENTING myself well... thanks, I mask so I seem ok. Glad my 'presentation' is coming through." I guess it feels a little invalidating to me. But I also don't suffer from the high/low vocabulary. I'll be interested to hear others' thoughts
3
โ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikenessโข with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions