My job took away my disability accommodations because there was not enough “medical evidence” to prove I have one. I’m sorry but is the chronic joint pain starting at 7 years old, the osteoarthritis diagnosis at 16, the “operate under the assumption of cEDS until you see a geneticist” not enough? Was the fact I can dislocate almost every joint in my body at will not enough either? Idk what to do I’m in so much pain from standing all day. I’m almost done at this job but not having a chair is almost crippling. I get home and my back is so stiff I have a hard time laying down, my knees are both swollen, my hips are sore from subluxing all day, among much more pain everywhere that I know you guys understand. I’ve been using lidocaine and Voltaren, but they can only help so much. I don’t know what to do


Ehlers-Danlos Syndrome (EDS)

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