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565d
I am curious if anyone else experienced a fear of expressing when they feel well? I have had people ignore and disregard my symptoms and concerns for so long that I find it scary to express when i feel well, for fear that people will assume I am making up or exaggerate the bad days.
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Ehlers-Danlos Syndrome (EDS)
Chronic Headache
Postural Orthostatic Tachycardia Syndrome (POTS)
Chronic Pain
Symptoms Involving Nervous & Musculoskeletal Systems
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518d
@Lesh1313 it’s so disheartening and frustrating! It makes me feel sad and worried to express when I feel good and when I feel bad. It’s sooo isolating! 😥
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521d
Yes!!! I’m constantly told I’m being dramatic:(
alllllllll the time :)
3
564d
@peachfuzz thank you for responding, sometimes it makes me feel crazy.
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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