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strawberrydog

Updated 9mo ago

Digital Spoon Tracking for Chronic Illness

Any spoonies who track their spoons digitally? I am noticing that I am overworking myself and I’m thinking tracking spoons would be good but I can’t find anything online to help track them: journaling is a no-go because of wrist pain.

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LixiKat

2y

I have to keep track of my spoons as well I have never done it digitally I’m not sure how to go about that but try prioritizing what’s most important first and take it easy during the task no your limits when it comes to spoons
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crescentnebula

2y

Do you get wrist pain after writing for a few minutes as well?
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strawberrydog

2y

Yes, my hands will start cramping and my wrist hurts
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ARC2014

2y

What is spoons?
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strawberrydog

2y

There’s an official definition but this is just how I think of it: Spoons is another word for energy. Imagine you can only use 15 of these “spoons” a day and each task takes up a certain amount of spoons. This is called the Spoon Theory and it was coined to help disabled and chronically ill people not overwork themselves or plan their day, though everyone can use it. Different tasks cost different “spoons” and your limit on how many you use a day can depend on how you feel in the morning. Often people who use the Spoon Theory go by Spoonies. If this is kind of confusing you can always look up Spoon Theory online, they might explain it better.
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ARC2014

2y

thank you for explaining It's very interesting and I'm glad I found this community. My theroid test always come back normal. never getting an answer to why am I so fatigued & foggy head ,i remember this feeling as young as 12yrs of age. and I will be 49 this year! I also noticed food makes me worst. Can't have eggs,coffee even decaf. Energy drink make me tired. I have my meals early in the day before 11am .incase I need to nap before the children get home from school.
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strawberrydog

2y

That is a lot to deal with by yourself, I can’t imagine also having to deal with children. I’m also in a similar boat, having aches and pains everywhere but my tests come back normal so doctors shrug it off or push the blame to my eating habits or working out too much. Maybe planning ahead each night of what gives you energy or brings down your energy could help? Taking warm baths always help me as well as heating pads, fatigue is more difficult to deal with but I just take as many breaks as I can during school. Unfortunately with fatigue, it’s not replenished by sleep and often makes it worse. I wish there was more to help manage it. Stay strong :)
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RemyCakes

2y

I use a mental health app called Finch. It helps me keep track of what I want to do, how motivated I feel, and how I'm doing emotionally. If you gain energy then your finch goes on a daily adventure that they tell you about later. I've been doing it for almost a year now and it helps with keeping me on track through brain fog, and it boosts my mood tremendously. Hope it helps you!
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PEMprincess

2y

I made an private Instagram account no one is allowed to follow that acts as my diary page & spoons tracker! Works like a charm because all posts are dated, chronological, free, private, and stays forever. + cute little pics of whatever I choose to post so I can move forward with captioning/commenting. Helps me vent about things I feel others wouldn’t understand, helps me go back in time and pinpoint if I’ve found a solution/ feel differently, and I have ease tracking spoons eating habits sleep patterns and whatever else. I don’t generally follow other pages either so my brain doesn’t get mixed up or distracted with able bodied people to prevent this tool from becoming a detriment that adds to the mental & emotional fatigue of it all. Though if I come across an account that feeds my brain positively like spiritual page, motivational, or chronic illness/pain related that’s cool to follow and see on occasion, but i mute the posts/stories if I’m not in the mood. Hope this helps! Happy healing 💝💝💝
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ginkgowink

2y

The Bearable app is mainly a symptom tracker, but it’s super customizable. I’m sure there’d be a way for you to track your spoons there. It’s a great symptom tracker too if you’re interested in that as well.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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