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Those with chronic invisible physical illness, how old were you when you were diagnosed? My mom was a single mom and we had 1 family practitioner near us. She was Mormon and let her beliefs dictate what she did and didn't do for her patients. (Not all Mormons are bad, but she sucked.) Had a lot of bad/dismissive doctors over the years. Finally got my hypermobility diagnosed in 2021. Now to find a neurologist who doesn't look at me (28f) and immediately dismiss me.
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Hypermobility Syndromes
Polycystic Ovary (PCOS)
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2008 (14) it was blamed that I had to many sports injuries. 2010 (16) misdiagnosed with fibromyalgia. 2018 (24) diagnosed with hypermobilty syndrome/ joint hypermobilty syndrome. 2020 (26) diagnosed with hypermobile ehlers danlos syndrome. It's basically the same thing. (28) I have been dismissed many times, been in many arguments with. I've been told I am to young for my diagnosis... "but here I am with it" seems to be my line. I walk around with my paperwork from many doctors. Then the doctors try to get me to do "party tricks" to prove it. It's very hard to find a great doctor. Trust me. Are you in nj by any chance? If so I do know some doctors you may like.
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I would find who you insurance covers and google them to find reviews. My first neuro was a bad experience. Search and good luck.
@SharkBlood23 I am in Maine! I found a PCP, OBGYN, and chiro that I like. Just have to find a neuro who won't dismiss the random episodes I've had as blood sugar issues (I have hypoglycemia) before my tests are even scheduled.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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