FreyjaSage

310d

Does anybody else have a hefty bag of medicine? does it make you feel weird when you have to pull it out in front of people?

I'm on a lot of medications for these seemingly neverending issues, I have a special bag for all my prescriptions and I feel like anytime I have to bring the bag out, even in front of my husband - I feel judged. like "oh what's wrong with you that you need that much medicine" or my newest fear "oh you're a hypochondriac. you don't need all that" does anyone else feel weird when they have to bring out the bag.

Spironolactone

Cyanocobalamin

Chronic Constipation

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  • livvie361

    310d

    I did, when I was traveling and tsa opens my backpack to find it filled with prescription meds and them side eyeing me asking me if they're all mine

  • LoLo_

    310d

    I am on 35 prescriptions(I think). So the bag got too big and now I set up a huge med box like an elderly person would have and pack them all in. It doesn’t make me feel weird. It sort of makes people realize how sick I really am seeing that I have many “invisible illnesses” that people don’t understand. If people question what’s wrong with you explain. It helps. I hid my diseases for years and what it did was make people assume i was healed or cured. So that made things so much worse. Now I have no problem saying “I can’t do such and such because of my Lyme Disease” instead of just “I can’t”. It helps people understand and I answer all questions. Feel free to message me back. I can talk more to you if you want. But I’ve been seriously sick with Late Stage Lyme for half of my life so I found it was just easier to explain.

  • LoLo_

    310d

    Sorry so long. I just feel really strongly about laying the truth out so people don’t judge what they don’t know. Same with my son’s Autism. It’s easier to just be upfront. I am a private person in all regards but it has helped me so much to be truthful and help ppl

  • Belugabear

    310d

    I used to feel weird about my insane amount of medication, but now I almost have a sense of pride, like I’m doing what I need to in order to take care of myself! Took a lot of therapy to get there and not feel judged, or more importantly care if I am judged, but it’s a lot better now!

  • Awessa

    310d

    Yea it does, I have a box

  • wise

    310d

    I have a big ass duffle bag for my meds, but before I got that, I used to use a 5 gallon Ziploc bag. I took it to my mom's once while I was visiting and I met her brother in law, who was also medically complex and terminally ill. he peeped my meds and said "I love your giant bag of pills" 😂 I miss that man every single day

  • FaithKay

    310d

    I have been on so many meds the last 20 yrs. Had 3 large plastic drawers. I got sicker and sicker as time passed on from the meds.Decided in March they were gonna end up killing me. So I started going off. I feel like I can think again. Was on 13 regular ones that was not counting things for sleep or allergy meds.2 pain meds I came off of and Ativan. So crazy but I feel better then I have in over 20 yrs. I'm still on steroids for Adrenal Insuffiency. I woke up and discovered no doctor or Healthcare team is making me better. They just treat my symptoms. It's a broken system. Learning how to take care of ourselves is our priority. I don't worry what others think anymore including my doctors. We know our body better then most of our doctor's. Being kind and giving myself grace was the biggest gift I could have gotten. I threw away over 50 meds I'm sure. How crazy is that?

  • selky

    310d

    yeah. im 18 and ive slowly just needed more and more meds, mostly for my chronic constipation. and i feel like im the only one (other than my twin sibling) out of my friends that has to take any meds. out of my friends and family they only take vitamins or an antidepressant/anti anxiety med. and its stopped me from going on vacations before because its hard to move all my meds around with me, since theyre not all pills some are liquid form and stuff. and sometimes even my family members say i dont need all my meds, even tho i obviously do or else my intestines just stop moving and im not able to go to the bathroom. its just frustrating.

  • secureme

    310d

    I also have a bag fill with medication. Let them talk ot my baggage at least my is shown but how sire are we that they are hiding there's

  • Soskae

    310d

    Mine is huge. (A gallon sized ziplock that barely closes) but I wear it with pride lol. I don’t really feel like there’s any other option because the best person to advocate for you is you. I used to get self conscious because their normal residence is in a big tote hanging off my nightstand so any of my friends would see if when they came over but now honestly I see it as a badge of survival. Yeah I may need all of these just to get by but a lot of people with all my conditions don’t get by period and it’s not fair to judge us all on the same scale as able bodied people. I think it also helps that my husband has diabetes and everyone in my immediate family and most of his also take prescriptions so it’s not an elephant in the room but it’s been addressed. I’d talk to your husband about it and I think you’ll feel a lot better. I hope this helps!!!!

  • shes_gut_issues

    310d

    I have too many to carry so I put them in a med box with 4 slots-morning, afternoon, evening, bed and just carry the day that it is! Saves so much room and because they’re already organized you just take them at the scheduled time and people don’t have to see you opening a million bottles to get the pills you need at that time a day because yes, I got wicked embarrassed. I do however have my PRNs in their bottle in my bag still. But I find it much easier with the pill container

  • Kimchi

    233d

    oh yea I def have a ton of pills. You're not alone!! It can be logistically challenging, especially if you travel or have a routine change. I take depakote and the dose I take either required 2 gigantic pills daily but I couldnt swallow them everytime without them getting stuck so I actually take 4 smaller pills of that daily, plus my levothyroxine, spironolactone, wellbutrin, and miralax packets as well as a few other otc meds. I've been on more before. Scripts change, it happens. Everyone needs different things.

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