Feeling Lost in Mental Health Support Groups

All forms of Dysautonomia can be a crapshoot trying to find info and support. Symptoms can be mild to severe and the knowledge and support needed can be vastly different. I'd be happy to help in any way I can. I'm very well versed in GP and have been dx with a non-GP motility disorder for over 5 years. I'd say most of GP treatment and management consists of 1) nutrition and hydration 2) nausea and symptom management (diarrhea, constipation, pain, etc).

I'm feeling similarly! I am also diabetic, diagnosed ages ago. I was hospitalized for about a week while they taught me how to care for myself. But this...the freaking doctor told me and then basically kicked me out of the hospital within about 30 minutes. He even told the nutritionist we were in a hurry!! NO, I WAS NOT! I have a diabetes educator/nutritionist I see who I know will be a great help, but that appointment isn't until the end of July. So for now I'm stuck learning by trial and error. It's scary. I also feel worse overall than when I went to the ER a week ago. I can eat again, but I'm having some reactions to the Reglan, and possibly to the radioactive contrast they used for the tests in hospital. My tears burn my skin!! WTH? So, the tears I've cried because of pain, frustration, and fear also hurt! I have found two things that so far seem to be helping without complications--a gentle walk after dinner, and abdominal massage. You have to do the massage in the correct direction, but it's super easy. I don't know if I can link here...If you Google "gastroparesis massage", you should find a link that goes to a lyme disease site. Apparently lyme is a cause for gastroparesis.