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Looking for Support with Hypermobile EDS Diagnosis

Allie319

748d

I was diagnosed with Hypermobile type EDS about 8 months ago. I’ve had life long symptoms but finally know it’s not all in my head. Looking for support and people who understand

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Ehlers-Danlos Syndrome (EDS)

Symptoms Involving Nervous & Musculoskeletal Systems

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Top reply
    • AudaCity

      747d

      We were diagnosed at 19 so now almost a decade ago 👀 which feels ridiculous tbh. We totally get it, it's so much more work to just do normal stuff and people don't understand that.

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    • AudaCity

      747d

      We were diagnosed at 19 so now almost a decade ago 👀 which feels ridiculous tbh. We totally get it, it's so much more work to just do normal stuff and people don't understand that.

      1

      Reply
    • Zel7

      747d

      I was diagnosed about a year and a half ago, at 22. I've had a mess of symptoms as long as I can remember and no one ever knew why or seemed to care. It was a major relief to finally have a name for it and know it's real. No more accepting people blowing me off and saying it's all in my head. It's real, it's scary, it's overwhelming and exhausting. One day at a time. You're not crazy. You're not a hypochondriac. Your feelings and symptoms are valid and deserve acknowledgement. We're here for you ❤️

      1

      Reply
      • Allie319

        747d

        @Zel7 thank you so much💕 it feels so nice to be with people who truly get how it feels

        0

        Reply
    • MammaKraken

      748d

      I was diagnosed June last year at age 32. I was always laughed at for being clumsy and dramatic

      1

      Reply
    • Marie21

      748d

      I was diagnosed with hEDS about a year ago and spent so long thinking and being told it was in my head. You're in the right place 💜

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      Reply
    • Bartender

      748d

      ❤️

      2

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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