Aeres

199d

not being able to afford a diagnosis has caused me to go back and forth on identifying myself as someone with austim. on one hand, it couldn't be anything else; all the symptoms align and i've been dealing with this all my life. on another hand, if i say i am, i feel as though i'm a fraud and i'm taking away from people who do have a diagnosis. thoughts?

Autism Spectrum Disorder (ASD)

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  • Ivan_26

    199d

    I don't agree with self-dx, people go to school for years and have access to all sorts of documents and research that others don't. And even then? Those nedical professionals can't self-dx. That's why when you get a diagnosis, they need to talk to parents, teachers, coaches, ect. When you get a diagnosis in your head, there's an internal bias you have which can make you see symptoms that aren't there, or ignore other things. There are so many overlapping disorders, that's why even with the help of medical professionals people still get misdiagnosed, not to say it's wrong to think you have a disorder, because even if you do/don't you're still experiencing symptoms which can make things difficult. Just say "I think I have..." instead of "I have..." that way no one is hurt, no misinfo is spread, and everything is fine until you can get a real diagnosis. Honestly, it doesn't even matter if you have it or not, you can't really get any help unless you have a diagnosis, and there's all sorts of support groups for people who aren't sure or suspect they have disorders.

    • Aeres

      199d

      thanks for the feedback!

    • Bernie7

      195d

      I highly disagree. Saying any self-dx isn’t valid is extremely harmful. Many people are low-income and cannot afford a formal diagnosis, because it can cost thousands of dollars. Also, it completely ignores the fact that the under/mis diagnosis of BIPOC & with autism is still extremely prevalent. Research on autism is historically done based on a white young male prototype. Self dx also does not take away any resources to those who have an official diagnosis. I personally did not self dx before i recieved my official diagnosis, but I highly suspected I had it, and I was correct. Social determinants are extremely important when looking at diagnosis.

      • frankisgayx

        195d

        this is super important to talk about, I'm glad you left this comment, i was omw to say something myself! In the last 6 months or so I've learned an incredible amount about ASD in so many areas. Adding onto the under/mis diagnosis of BIPOC - you mentioned it being very expensive and unattainable for some low-income families. Considering that BIPOC have been marginalized into poorer communities for decades, that's another big way that an entire group of citizens are disadvantaged in terms of official dx. BIPOC and AFAB people especially are more likely to need to take dx into their own hands, which like you said doesn't take away from those with official dx, rather creates a safe space for people that wouldn't necessarily fit the standards of the DSM-5 (like you said - most studies yet were conducted on white males) or couldn't afford the dx itself. It's also important to note that self-dx takes a lot of work. It isn't comparable to going to med school, but it is definitely has its challenges and requires a lot of energy and introspection. I 100% agree that self-dx is valid.

  • Rayyybies

    197d

    I've never been formally diagnosed with adhd/autism, but after 5+ years spread across 3 therapists who all said I had one or the other, friends/a partner who have adhd/autism, and talking to people online, I am just finally beginning to agree that these apply to me (within the last year or two) and I figure labels are only worth as much as they help, yeah? So if this label might help you travel through the world and you have spent time talking to others, family, ect and it'll help(even just help by not driving you crazy bring unsure) then that's good enough in my book.

    • Aeres

      195d

      thank you, i appreciate that so much!

  • Bernie7

    195d

    i am so sorry about your struggle. I am late dxed, and even though I have an offical DX, i still gaslight myself. I just say that if using skills or advice that helps autistics helps you then go right ahead!!

  • clowntown

    193d

    Autism diagnoses aren't a resource. It's literally a word. A label. There's no supply or demand, just take it. It literally only affects you.

  • Katty

    193d

    If the word helps and makes you cosy: use it. If the strategies suggested for autistics help you: embrace them. If the word being euphoria and understand to your life: it’s probably right. Autism is about the way your brain is wired, and no one knows that better than you. If this word brings understanding to your self and your life it can quite literally be life changing and life saving. The internal turmoil between failing to be neurotypical and feeling unable to express your true self can often be freed with the label autistic and you don’t need anyone’s permission to go through that journey. Although if you feel like you need it, I’ll give you the permission. * Diagnosed autistic to questioning autistic. You have permission to embrace yourself in any way you see fit. Please frolic toward neurodivergent euphoria. * <3

    • Aeres

      193d

      thank you so much! it actually brings comfort knowing i'm not taking away from diagnosed autistics

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